'Two clicks and I'm in!' Patients as co-actors in managing health data through a personal health record infrastructure.
ehealth
electronic health records
health data
health infrastructures
health practices
personal health record
Journal
Health informatics journal
ISSN: 1741-2811
Titre abrégé: Health Informatics J
Pays: England
ID NLM: 100883604
Informations de publication
Date de publication:
06 2019
06 2019
Historique:
pubmed:
15
6
2017
medline:
15
7
2020
entrez:
15
6
2017
Statut:
ppublish
Résumé
One of the most significant changes in the healthcare field in the past 10 years has been the large-scale digitalization of patients' healthcare data, and an increasing emphasis on the importance of patients' roles in cooperating with healthcare professionals through digital infrastructures. A project carried out in the North of Italy with the aim of creating a personal health record has been evaluated over the course of 5 years by means of mixed method fieldwork. Two years after the infrastructure was put into regular service, the way in which patients are represented in the system and patient practices have been studied using surveys and qualitative interviews. The data show that, first, patients have become co-actors in describing their clinical histories; second, that they have become co-actors in the diagnosis process; and finally, they have become co-actors in the management of time and space as regards their specific state of health.
Identifiants
pubmed: 28612642
doi: 10.1177/1460458217712056
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM