'Normal' and 'failing' mothers: Women's constructions of maternal subjectivity while living with multiple sclerosis.

chronic illness and disability discourse analysis experiencing illness and narratives gender and health multiple sclerosis post-structuralism/postmodernism

Journal

Health (London, England : 1997)
ISSN: 1461-7196
Titre abrégé: Health (London)
Pays: England
ID NLM: 9800465

Informations de publication

Date de publication:
09 2019
Historique:
pubmed: 2 11 2017
medline: 29 5 2020
entrez: 2 11 2017
Statut: ppublish

Résumé

Multiple sclerosis causes physical and cognitive impairment that can impact women's experiences of motherhood. This study examined how women construct their maternal subjectivities, or sense of self as a mother, drawing on a framework of biographical disruption. A total of 20 mothers with a multiple sclerosis diagnosis took part in semi-structured interviews. Transcripts were analysed using thematic decomposition to identify subject positions that women adopted in relation to cultural discourses of gender, motherhood and illness. Three main subject positions were identified: 'The Failing Mother', 'Fear of Judgement and Burdening Others' and 'The Normal Mother'. Women's sense of self as the 'Failing Mother' was attributed to the impact of multiple sclerosis, contributing to biographical disruption and reinforced through 'Fear of Judgement and Burdening Others' within social interactions. In accounts of the 'Normal Mother', maternal subjectivity was renegotiated by adopting strategies to manage the limitations of multiple sclerosis on mothering practice. This allowed women to self-position as 'good' mothers. Health professionals can assist women by acknowledging the embodied impact of multiple sclerosis on maternal subjectivities, coping strategies that women employ to address potential biographical disruption, and the cultural context of mothering, which contributes to women's experience of subjectivity and well-being when living with multiple sclerosis.

Identifiants

pubmed: 29090632
doi: 10.1177/1363459317739442
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

516-532

Auteurs

Chloe Parton (C)

Western Sydney University, Australia.

Terri Katz (T)

Western Sydney University, Australia.

Jane M Ussher (JM)

Western Sydney University, Australia.

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Classifications MeSH