'Normal' and 'failing' mothers: Women's constructions of maternal subjectivity while living with multiple sclerosis.
chronic illness and disability
discourse analysis
experiencing illness and narratives
gender and health
multiple sclerosis
post-structuralism/postmodernism
Journal
Health (London, England : 1997)
ISSN: 1461-7196
Titre abrégé: Health (London)
Pays: England
ID NLM: 9800465
Informations de publication
Date de publication:
09 2019
09 2019
Historique:
pubmed:
2
11
2017
medline:
29
5
2020
entrez:
2
11
2017
Statut:
ppublish
Résumé
Multiple sclerosis causes physical and cognitive impairment that can impact women's experiences of motherhood. This study examined how women construct their maternal subjectivities, or sense of self as a mother, drawing on a framework of biographical disruption. A total of 20 mothers with a multiple sclerosis diagnosis took part in semi-structured interviews. Transcripts were analysed using thematic decomposition to identify subject positions that women adopted in relation to cultural discourses of gender, motherhood and illness. Three main subject positions were identified: 'The Failing Mother', 'Fear of Judgement and Burdening Others' and 'The Normal Mother'. Women's sense of self as the 'Failing Mother' was attributed to the impact of multiple sclerosis, contributing to biographical disruption and reinforced through 'Fear of Judgement and Burdening Others' within social interactions. In accounts of the 'Normal Mother', maternal subjectivity was renegotiated by adopting strategies to manage the limitations of multiple sclerosis on mothering practice. This allowed women to self-position as 'good' mothers. Health professionals can assist women by acknowledging the embodied impact of multiple sclerosis on maternal subjectivities, coping strategies that women employ to address potential biographical disruption, and the cultural context of mothering, which contributes to women's experience of subjectivity and well-being when living with multiple sclerosis.
Identifiants
pubmed: 29090632
doi: 10.1177/1363459317739442
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM