Development of a Hydroxyurea Decision Aid for Parents of Children With Sickle Cell Anemia.
Journal
Journal of pediatric hematology/oncology
ISSN: 1536-3678
Titre abrégé: J Pediatr Hematol Oncol
Pays: United States
ID NLM: 9505928
Informations de publication
Date de publication:
01 2019
01 2019
Historique:
pubmed:
26
7
2018
medline:
15
5
2019
entrez:
26
7
2018
Statut:
ppublish
Résumé
National evidence-based guidelines recommend offering hydroxyurea to patients with sickle cell anemia 9 months of age and older using shared decision making, but offer no strategies to aid implementation. We developed a hydroxyurea multicomponent decision aid via a needs assessment, clinic observations, and iterative feedback to address parent decision needs and promote a discussion between clinicians and parents. A total of 75 parents and 28 clinicians participated across all phases. The decision aid was rated as useful. Hydroxyurea knowledge improved and decisional conflict decreased supporting the potential for use to facilitate shared decision making in pediatric sickle cell anemia.
Identifiants
pubmed: 30044352
doi: 10.1097/MPH.0000000000001257
pmc: PMC7359001
mid: NIHMS1599509
doi:
Substances chimiques
Hydroxyurea
X6Q56QN5QC
Types de publication
Journal Article
Research Support, U.S. Gov't, P.H.S.
Langues
eng
Sous-ensembles de citation
IM
Pagination
56-63Subventions
Organisme : AHRQ HHS
ID : U19 HS021114
Pays : United States
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