Management of congenital ichthyoses: European guidelines of care, part one.

Administration, Oral Administration, Topical Behavior Therapy / methods Consensus Dermatologic Agents / therapeutic use Dermatology / methods Europe Genetic Counseling / standards Humans Ichthyosiform Erythroderma, Congenital / diagnosis Quality of Life Social Support Systematic Reviews as Topic

Journal

The British journal of dermatology
ISSN: 1365-2133
Titre abrégé: Br J Dermatol
Pays: England
ID NLM: 0004041

Informations de publication

Date de publication:
02 2019
Historique:
accepted: 10 09 2018
pubmed: 15 9 2018
medline: 15 2 2020
entrez: 15 9 2018
Statut: ppublish

Résumé

These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016 and a consensus on the discussions. They summarize evidence and expert-based recommendations and are intended to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part one, covering topical therapies, systemic therapies, psychosocial management, communicating the diagnosis and genetic counselling.

Identifiants

DOI: 10.1111/bjd.17203 PMID: 30216406
pubmed: 30216406
doi: 10.1111/bjd.17203
doi:

Substances chimiques

Dermatologic Agents 0

Types de publication

Journal Article Practice Guideline

Langues

eng

Sous-ensembles de citation

IM

Pagination

272-281

Commentaires et corrections

Type : CommentIn

Informations de copyright

© 2018 British Association of Dermatologists.

Auteurs

J Mazereeuw-Hautier (J)

Reference Centre for Rare Skin Diseases, Dermatology Department, Larrey Hospital, Toulouse, France.
ORCID: 0000-0001-6259-9790

A Vahlquist (A)

Department of Medical Sciences, Uppsala University, Uppsala, Sweden.

H Traupe (H)

Department of Dermatology, University Hospital of Münster, Von-Esmarch-Straße 58,, D-48149, Münster, Germany.

A Bygum (A)

Department of Dermatology and Allergy Centre, Odense University Hospital, Odense, Denmark.

C Amaro (C)

Hospital de Egas Moniz, Centro Hospitalar Lisboa Ocidental, Lisbon, Portugal.

M Aldwin (M)

Ichthyosis Support Group, PO Box 1242, Yateley, GU47 7FL, U.K.

A Audouze (A)

Association Ichtyose France, Bellerive sur Allier, France.

C Bodemer (C)

Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Paris, France.
Institut Imagine, Université Descartes, Sorbonne Paris Cité, Hôpital Necker-Enfants Malades, Paris.

E Bourrat (E)

Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Paris, France.

A Diociaiuti (A)

Dermatology Division, Bambino Gesù Children's Hospital-IRCCS, Rome, Italy.

M Dolenc-Voljc (M)

Department of Dermatovenereology, University Medical Centre Ljubljana, Faculty of Medicine, University of Ljubljana, Ljubljana, Slovenia.

I Dreyfus (I)

Reference Centre for Rare Skin Diseases, Dermatology Department, Larrey Hospital, Toulouse, France.

M El Hachem (M)

Dermatology Division, Bambino Gesù Children's Hospital-IRCCS, Rome, Italy.

J Fischer (J)

Institute of Human Genetics, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.

A Gånemo (A)

Department of Dermatology, Institute of Clinical Research in Malmö, Skåne University Hospital, Lund University, Malmö, Sweden.

C Gouveia (C)

Department of Dermatology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.

R Gruber (R)

Department of Dermatology, Venereology and Allergology, Medical University of Innsbruck, Innsbruck, Austria.

S Hadj-Rabia (S)

Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Paris, France.
Institut Imagine, Université Descartes, Sorbonne Paris Cité, Hôpital Necker-Enfants Malades, Paris.
ORCID: 0000-0001-6801-7106

D Hohl (D)

Department of Dermatology, Hôpital de Beaumont, Lausanne, Switzerland.

N Jonca (N)

Epithelial Differentiation and Rheumatoid Autoimmunity Unit (UDEAR), UMR 1056 Inserm - Toulouse 3 University, Purpan Hospital, Toulouse, France.

K Ezzedine (K)

Department of Dermatology, Hôpital Henri Mondor, EA EpiDerm, UPEC-Université Paris-Est Créteil, 94010, Créteil, France.

D Maier (D)

Dermatology Department, Iuliu Haţieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania.

R Malhotra (R)

Corneoplastic Unit, Queen Victoria Hospital NHS Trust, East Grinstead, U.K.

M Rodriguez (M)

Department of Ear, Nose and Throat, Hospital Universitario Son Espases, Palma de Mallorca, Spain.

H Ott (H)

Division of Pediatric Dermatology and Allergology, Auf Der Bult Children's Hospital, Hanover, Germany.

D G Paige (DG)

Department of Dermatology, Royal London Hospital, Barts Health NHS Trust, London, E1 1BB, U.K.

A Pietrzak (A)

Department of Dermatology, Venereology and Paediatric Dermatology, Medical University of Lublin, Lublin, Poland.

F Poot (F)

ULB-Erasme Hospital, Department of Dermatology, Brussels, Belgium.

M Schmuth (M)

Department of Dermatology, Venereology and Allergology, Medical University of Innsbruck, Innsbruck, Austria.

J C Sitek (JC)

Department of Dermatology and Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway.

P Steijlen (P)

Department of Dermatology, Maastricht University Medical Centre, GROW Research School for Oncology and Developmental Biology, Maastricht, the Netherlands.

G Wehr (G)

Selbsthilfe Ichthyose, Kürten, Germany.

M Moreen (M)

Department of Dermatology, University Hospitals Leuven, Leuven, Belgium.
Department of Microbiology and Immunology, KU Leuven, Belgium.

E A O'Toole (EA)

Centre for Cell Biology and Cutaneous Research, Blizard Institute, Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London, U.K.

V Oji (V)

Department of Dermatology, University Hospital of Münster, Von-Esmarch-Straße 58,, D-48149, Münster, Germany.
Hautarztpraxis am Buddenturm, Rudolf-von-Langen-Straße 55, D-48147, Münster, Germany.

A Hernandez-Martin (A)

Department of Dermatology, Hospital Infantil Niño Jesús, Madrid, Spain.

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Classifications MeSH

questionsmedicales.fr › Thérapeutique › Traitement médicamenteux › Voies d'administration de substances chimiques et des médicaments › Administration par voie orale › Management of congenital ichthyoses: European...
questionsmedicales.fr › Thérapeutique › Traitement médicamenteux › Voies d'administration de substances chimiques et des médicaments › Administration par voie topique › Management of congenital ichthyoses: European...
questionsmedicales.fr › Disciplines et activités comportementales › Psychothérapie › Thérapie comportementale › Management of congenital ichthyoses: European...
questionsmedicales.fr › Phénomènes psychologiques › Processus mentaux › Pensée (activité mentale) › Prise de décision › Consensus › Management of congenital ichthyoses: European...
questionsmedicales.fr › Actions chimiques et utilisations › Actions pharmacologiques › Utilisations thérapeutiques › Produits dermatologiques › Management of congenital ichthyoses: European...
questionsmedicales.fr › Professions de santé › Médecine › Dermatologie › Management of congenital ichthyoses: European...
questionsmedicales.fr › Régions géographiques › Europe › Management of congenital ichthyoses: European...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Services de santé › Services de génétique › Conseil génétique › Management of congenital ichthyoses: European...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Management of congenital ichthyoses: European...
questionsmedicales.fr › Maladies de la peau et du tissu conjonctif › Maladies de la peau › Maladies génétiques de la peau › Érythrodermie ichtyosiforme congénitale › Management of congenital ichthyoses: European...
questionsmedicales.fr › Environnement et santé publique › Santé publique › Mesures épidémiologiques › Démographie › État de santé › Qualité de vie › Management of congenital ichthyoses: European...
questionsmedicales.fr › Sciences sociales › Sociologie › Facteurs sociologiques › Environnement social › Soutien social › Management of congenital ichthyoses: European...
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