Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis.
Autism advocacy
Ethics
Public engagement
Qualitative research
Journal
Journal of autism and developmental disorders
ISSN: 1573-3432
Titre abrégé: J Autism Dev Disord
Pays: United States
ID NLM: 7904301
Informations de publication
Date de publication:
Mar 2019
Mar 2019
Historique:
pubmed:
26
10
2018
medline:
17
4
2019
entrez:
26
10
2018
Statut:
ppublish
Résumé
This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic impairments. In particular, it is reported that a heterogeneity of autism impairments means there is little agreement on the form research should take, while socio-communicative impairments make interactions difficult. Conversely, researchers describe autistic individuals as having the capacity to positively influence research. In this paper we discuss the nature of these claims and stress the need for autism-specific modes of engagement to be developed.
Identifiants
pubmed: 30357647
doi: 10.1007/s10803-018-3783-7
pii: 10.1007/s10803-018-3783-7
pmc: PMC6394559
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
809-818Subventions
Organisme : Economic and Social Research Council
ID : ES/I01196X/1
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