Relational aspects of mastery for frail, older adults: The role of informal caregivers in the care process.


Journal

Health & social care in the community
ISSN: 1365-2524
Titre abrégé: Health Soc Care Community
Pays: England
ID NLM: 9306359

Informations de publication

Date de publication:
05 2019
Historique:
received: 07 04 2018
revised: 01 09 2018
accepted: 27 09 2018
pubmed: 31 10 2018
medline: 12 5 2020
entrez: 31 10 2018
Statut: ppublish

Résumé

Frail, older care recipients are often thought of as individuals with a decreased mastery of everyday life skills. Various authors have proposed to acknowledge a relational dimension of mastery, defined as the ability to maintain control over one's life with the help of others. This study explores how frail, older adults experience relational aspects of mastery and the role of their informal caregivers in maintaining these aspects of mastery over the care process. Qualitative interviews (N = 121) were conducted in 2016 with potentially frail, community-dwelling older adults participating in the Detection, Support and Care for Older people: Prevention and Empowerment (D-SCOPE) project. A secondary analysis of 65 interviews reveals that, according to frail, older adults, informal caregivers contribute in various ways to the preservation of their mastery. This differs across the four elements of care: caring about (attentiveness), taking care of (responsibility), care-giving (competence), and care-receiving (responsiveness). However, in some cases, older adults experienced a loss of mastery; for example, when informal caregivers did not understand their care needs and did not involve them in the decision, organisation, and provision of care. A relational dimension of mastery needs to be acknowledged in frail, older care recipients since stimulating mastery is a crucial element for realising community care objectives and person-centred and integrated care.

Identifiants

pubmed: 30375701
doi: 10.1111/hsc.12676
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

632-641

Subventions

Organisme : Flemish Government Agency for Innovation by Science and Technology
ID : IWT-140027 SBO
Pays : International

Investigateurs

S Dury (S)
E Dierckx (E)
D Duppen (D)
D Verté (D)
L J Hoeyberghs (LJ)
N De Witte (N)
S Engelborghs (S)
P P De Deyn (PP)
J De Lepeleire (J)
A van der Vorst (A)
G A R Zijlstra (GAR)
G I J M Kempen (GIJM)
J M G A Schols (JMGA)

Informations de copyright

© 2018 John Wiley & Sons Ltd.

Auteurs

Deborah Lambotte (D)

Department of Educational Sciences, Vrije Universiteit Brussel, Brussels, Belgium.

Martinus J M Kardol (MJM)

Academic Chair Active Ageing, Vrije Universiteit Brussel, Brussels, Belgium.

Birgitte Schoenmakers (B)

Department of Public Health and Primary Care, University of Leuven, Leuven, Belgium.

Bram Fret (B)

Department of Educational Sciences, Vrije Universiteit Brussel, Brussels, Belgium.

An-Sofie Smetcoren (AS)

Department of Educational Sciences, Vrije Universiteit Brussel, Brussels, Belgium.

Ellen E De Roeck (EE)

Department of Clinical and Lifespan Psychology, Vrije Universiteit Brussel, Brussels, Belgium.
Laboratory of Neurochemistry and Behavior, University of Antwerp, Wilrijk, Belgium.

Michaël Van der Elst (M)

Department of Public Health and Primary Care, University of Leuven, Leuven, Belgium.

Liesbeth De Donder (L)

Department of Educational Sciences, Vrije Universiteit Brussel, Brussels, Belgium.

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