[Promoting home support for elderly people with neurocognitive disorders: Caregiver perception of the help-seeking process].

Favoriser le maintien à domicile des personnes âgées atteintes de troubles neurocognitifs. Perception par les proches aidants de leur processus de recherche d’aide.

Journal

Revue d'epidemiologie et de sante publique
ISSN: 0398-7620
Titre abrégé: Rev Epidemiol Sante Publique
Pays: France
ID NLM: 7608039

Informations de publication

Date de publication:
Feb 2019
Historique:
received: 16 06 2017
revised: 19 07 2018
accepted: 06 10 2018
pubmed: 16 11 2018
medline: 29 5 2019
entrez: 16 11 2018
Statut: ppublish

Résumé

Caregivers play an essential role in maintaining home care for elderly people with dementia. However, it is difficult for caregivers to target their own needs as well as those of the person with neurocognitive disorders they support on a daily basis. Identifying the needed resources can also be difficult. In order to better assist caregivers in identifying resources needed to support their role, this study aims to understand the factors that influence their help-seeking process. This qualitative and descriptive study focuses on the point of view of the main people affected by this problem: caregivers. Eleven caregivers of elderly people with dementia living at home were recruited by convenience sampling. Semi-structured interviews were conducted, and the data were analyzed according to Mast's typology. The factors influencing caregivers help-seeking process were categorized into five themes: 1) service-related (e.g. wait times); 2) personal (e.g. feeling intrusive); 3) experiential (e.g. positive use of a service); 4) relational (e.g. rejection of the elder), and 5) informational (e.g. directed to the right service). Caregivers face many challenges in their help-seeking process and want to be more proactively accompanied in a way adapted to their changing needs.

Sections du résumé

BACKGROUND BACKGROUND
Caregivers play an essential role in maintaining home care for elderly people with dementia. However, it is difficult for caregivers to target their own needs as well as those of the person with neurocognitive disorders they support on a daily basis. Identifying the needed resources can also be difficult. In order to better assist caregivers in identifying resources needed to support their role, this study aims to understand the factors that influence their help-seeking process.
METHODS METHODS
This qualitative and descriptive study focuses on the point of view of the main people affected by this problem: caregivers. Eleven caregivers of elderly people with dementia living at home were recruited by convenience sampling. Semi-structured interviews were conducted, and the data were analyzed according to Mast's typology.
RESULTS RESULTS
The factors influencing caregivers help-seeking process were categorized into five themes: 1) service-related (e.g. wait times); 2) personal (e.g. feeling intrusive); 3) experiential (e.g. positive use of a service); 4) relational (e.g. rejection of the elder), and 5) informational (e.g. directed to the right service).
CONCLUSION CONCLUSIONS
Caregivers face many challenges in their help-seeking process and want to be more proactively accompanied in a way adapted to their changing needs.

Identifiants

pubmed: 30429062
pii: S0398-7620(18)31361-0
doi: 10.1016/j.respe.2018.10.002
pii:
doi:

Types de publication

Journal Article

Langues

fre

Sous-ensembles de citation

IM

Pagination

43-49

Informations de copyright

Copyright © 2018 Elsevier Masson SAS. All rights reserved.

Auteurs

K Latulippe (K)

Département d'études sur l'enseignement et l'apprentissage, université Laval, Québec, QC, Canada; Centre d'excellence sur le vieillissement de Québec (CEVQ), Québec, QC, Canada. Electronic address: karine.latulippe.3@ulaval.ca.

M Guay (M)

École de réadaptation, université de Sherbrooke, Sherbrooke, QC, Canada; Centre de recherche sur le vieillissement, Sherbrooke, QC, Canada.

A Giguère (A)

Centre d'excellence sur le vieillissement de Québec (CEVQ), Québec, QC, Canada; Département de médecine familiale et de médecine d'urgence de l'université Laval, Québec, QC, Canada.

V Provencher (V)

École de réadaptation, université de Sherbrooke, Sherbrooke, QC, Canada; Centre de recherche sur le vieillissement, Sherbrooke, QC, Canada.

A Sévigny (A)

Centre d'excellence sur le vieillissement de Québec (CEVQ), Québec, QC, Canada; École de service social de l'université Laval, Québec, QC, Canada.

V Poulin (V)

Université du Québec à Trois-Rivières, Trois-Rivières, QC, Canada; Centre interdisciplinaire de recherche en réadaptation et intégration sociale (CIRRIS), Québec, QC, Canada.

V Dubé (V)

Faculté des sciences infirmières, université de Montréal, Montréal, QC, Canada; Centre de recherche du centre hospitalier de l'université de Montréal (CRCHUM), Montréal, Canada.

S Éthier (S)

Centre d'excellence sur le vieillissement de Québec (CEVQ), Québec, QC, Canada; École de service social de l'université Laval, Québec, QC, Canada.

M Carignan (M)

Centre d'excellence sur le vieillissement de Québec (CEVQ), Québec, QC, Canada.

D Giroux (D)

Centre d'excellence sur le vieillissement de Québec (CEVQ), Québec, QC, Canada; Département de réadaptation, université Laval, Québec, QC, Canada.

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Classifications MeSH