Awkward Choreographies from Cancer's Margins: Incommensurabilities of Biographical and Biomedical Knowledge in Sexual and/or Gender Minority Cancer Patients' Treatment.

Access to knowledge Biographical knowledge Cancer Choreography Equity Genders Health disparities Illness narratives LGBT Sexualities Transgender

Journal

The Journal of medical humanities
ISSN: 1573-3645
Titre abrégé: J Med Humanit
Pays: United States
ID NLM: 8917478

Informations de publication

Date de publication:
Sep 2020
Historique:
pubmed: 30 11 2018
medline: 28 4 2021
entrez: 30 11 2018
Statut: ppublish

Résumé

Canadian and American population-based research concerning sexual and/or gender minority populations provides evidence of persistent breast and gynecologic cancer-related health disparities and knowledge divides. The Cancer's Margins research investigates the complex intersections of sexual and/or gender marginality and incommensurabilities and improvisation in engagements with biographical and biomedical cancer knowledge. The study examines how sexuality and gender are intersectionally constitutive of complex biopolitical mappings of cancer health knowledge that shape knowledge access and its mobilization in health and treatment decision-making. Interviews were conducted with a diverse group (n=81) of sexual and/or gender minority breast or gynecologic cancer patients. The LGBQ//T2 cancer patient narratives we have analyzed document in fine grain detail how it is that sexual and/or gender minority cancer patients punctuate the otherwise lockstep assemblage of their cancer treatment decision-making with a persistent engagement in creative attempts to resist, thwart and otherwise manage the possibility of discrimination and likewise, the probability of institutional erasure in care settings. Our findings illustrate the demands that cancer places on LGBQ//T2 patients to choreograph access to, and mobilization of knowledge and care, across significantly distinct and sometimes incommensurable systems of knowledge.

Identifiants

pubmed: 30488328
doi: 10.1007/s10912-018-9542-0
pii: 10.1007/s10912-018-9542-0
pmc: PMC7343748
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

341-361

Subventions

Organisme : Canadian Institutes of Health Research
ID : 128158
Pays : Canada
Organisme : Canadian Institutes of Health Research
ID : 275227
Pays : Canada

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Auteurs

Mary K Bryson (MK)

Department of Language and Literacy Education, Faculty of Education, University of British Columbia, Vancouver, BC, Canada. mary.bryson@ubc.ca.

Evan T Taylor (ET)

Department of Language and Literacy Education, UBC, Vancouver, BC, Canada.

Lorna Boschman (L)

Department of Language and Literacy Education, UBC, Vancouver, BC, Canada.

Tae L Hart (TL)

Department of Psychology, Ryerson University, Toronto, ON, Canada.

Jacqueline Gahagan (J)

School of Health and Human Performance, Dalhousie University, Halifax, NS, Canada.

Genevieve Rail (G)

Simone de Beauvoir Institute, Concordia University, Montréal, QC, Canada.

Janice Ristock (J)

Women's and Gender Studies, University of Manitoba, Winnipeg, MB, Canada.

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