Regulating Genome Editing: For an Enlightened Democratic Governance.

democracy genome editing moral pluralism moral psychology public engagement public policy

Journal

Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees
ISSN: 1469-2147
Titre abrégé: Camb Q Healthc Ethics
Pays: United States
ID NLM: 9208482

Informations de publication

Date de publication:
01 2019
Historique:
entrez: 21 12 2018
pubmed: 21 12 2018
medline: 28 3 2020
Statut: ppublish

Résumé

How should we regulate genome editing in the face of persistent substantive disagreement about the moral status of this technology and its applications? In this paper, we aim to contribute to resolving this question. We first present two diametrically opposed possible approaches to the regulation of genome editing. A first approach, which we refer to as "elitist," is inspired by Joshua Greene's work in moral psychology. It aims to derive at an abstract theoretical level what preferences people would have if they were committed to implementing public policies regulating genome editing in a context of ethical pluralism. The second approach, which we refer to as the democratic approach, defended by Francoise Baylis and Sheila Jasanoff et al., emphasizes the importance of including the public's expressed attitudes in the regulation of genome editing. After pointing out a serious shortcoming with each of these approaches, we propose our own favored approach-the "enlightened democracy" approach-which attempts to combine the strengths of the elitist and democratic approaches while avoiding their weaknesses.

Identifiants

pubmed: 30570466
pii: S0963180118000403
doi: 10.1017/S0963180118000403
pmc: PMC6316359
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

76-88

Subventions

Organisme : Wellcome Trust
ID : 203132
Pays : United Kingdom
Organisme : Wellcome Trust
ID : 208189
Pays : United Kingdom
Organisme : Wellcome Trust
ID : 208189/Z/17/Z
Pays : United Kingdom

Commentaires et corrections

Type : CommentIn

Références

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pubmed: 28919655
Nature. 2015 Mar 26;519(7544):410-1
pubmed: 25810189
Atl Mon. 2004 Apr;292(3):50-4, 56-60, 62
pubmed: 15468473
Nature. 2018 Mar 22;555(7697):435-437
pubmed: 29565415
Med Health Care Philos. 2018 Jun;21(2):215-225
pubmed: 28725950

Auteurs

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Classifications MeSH