Regulating Genome Editing: For an Enlightened Democratic Governance.
democracy
genome editing
moral pluralism
moral psychology
public engagement
public policy
Journal
Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees
ISSN: 1469-2147
Titre abrégé: Camb Q Healthc Ethics
Pays: United States
ID NLM: 9208482
Informations de publication
Date de publication:
01 2019
01 2019
Historique:
entrez:
21
12
2018
pubmed:
21
12
2018
medline:
28
3
2020
Statut:
ppublish
Résumé
How should we regulate genome editing in the face of persistent substantive disagreement about the moral status of this technology and its applications? In this paper, we aim to contribute to resolving this question. We first present two diametrically opposed possible approaches to the regulation of genome editing. A first approach, which we refer to as "elitist," is inspired by Joshua Greene's work in moral psychology. It aims to derive at an abstract theoretical level what preferences people would have if they were committed to implementing public policies regulating genome editing in a context of ethical pluralism. The second approach, which we refer to as the democratic approach, defended by Francoise Baylis and Sheila Jasanoff et al., emphasizes the importance of including the public's expressed attitudes in the regulation of genome editing. After pointing out a serious shortcoming with each of these approaches, we propose our own favored approach-the "enlightened democracy" approach-which attempts to combine the strengths of the elitist and democratic approaches while avoiding their weaknesses.
Identifiants
pubmed: 30570466
pii: S0963180118000403
doi: 10.1017/S0963180118000403
pmc: PMC6316359
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
76-88Subventions
Organisme : Wellcome Trust
ID : 203132
Pays : United Kingdom
Organisme : Wellcome Trust
ID : 208189
Pays : United Kingdom
Organisme : Wellcome Trust
ID : 208189/Z/17/Z
Pays : United Kingdom
Commentaires et corrections
Type : CommentIn
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