Heterotopic ossifications and Charcot joints: Congenital insensitivity to pain with anhidrosis (CIPA) and a novel NTRK1 gene mutation.


Journal

European journal of medical genetics
ISSN: 1878-0849
Titre abrégé: Eur J Med Genet
Pays: Netherlands
ID NLM: 101247089

Informations de publication

Date de publication:
Jan 2020
Historique:
received: 21 07 2018
revised: 11 01 2019
accepted: 12 01 2019
pubmed: 25 1 2019
medline: 2 10 2020
entrez: 25 1 2019
Statut: ppublish

Résumé

Congenital insensitivity to pain with anhidrosis (CIPA), also known as hereditary sensory and autonomic neuropathy type IV (HSAN-IV), is a rare and severe autosomal recessive disorder. We report on an adult female patient whose clinical findings during childhood were not recognized as CIPA. There was neither complete anhidrosis nor a recognizable sensitivity to heat. Tumorlike swellings of many joints and skeletal signs of Charcot neuropathy developed in adolescence which, together with a history of self-mutilation, led to a clinical suspicion of CIPA confirmed by identification of a novel homozygous variant c.1795G > T in the NTRK1 gene in blood lymphocytes. Both parents were heterozygous for the mutation. The variant predicts a premature stop codon (p.Gly599Ter) and thus represents a pathogenic variant; the first reported in the Southeastern European population.

Identifiants

pubmed: 30677517
pii: S1769-7212(18)30561-5
doi: 10.1016/j.ejmg.2019.01.003
pii:
doi:

Substances chimiques

Receptor, trkA EC 2.7.10.1

Types de publication

Case Reports Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

103613

Informations de copyright

Copyright © 2019 Elsevier Masson SAS. All rights reserved.

Auteurs

Zoran Gucev (Z)

Medical Faculty, Skopje, Macedonia. Electronic address: gucevz@gmail.com.

Velibor Tasic (V)

Medical Faculty, Skopje, Macedonia.

Ivona Bogevska (I)

Medical Faculty, Skopje, Macedonia.

Nevenka Laban (N)

Medical Faculty, Skopje, Macedonia.

Alek Saveski (A)

Medical Faculty, Skopje, Macedonia.

Momir Polenakovic (M)

Macedonian Academy of Sciences and Arts, Skopje, Macedonia.

Dijana Plaseska-Karanfilska (D)

Macedonian Academy of Sciences and Arts, Skopje, Macedonia.

Katalin Komlosi (K)

Institute of Human Genetics, Medical Center of the Johannes Gutenberg University Mainz, University of Mainz, Germany.

Jennifer Winter (J)

Institute of Human Genetics, Medical Center of the Johannes Gutenberg University Mainz, University of Mainz, Germany.

Susann Schweiger (S)

Institute of Human Genetics, Medical Center of the Johannes Gutenberg University Mainz, University of Mainz, Germany.

Gen Nishimura (G)

Intractable Disease Center, Saitama Medical University Hospital, Saitama, Japan.

Jürgen Spranger (J)

Children`s Hospital, University of Mainz, Germany.

Oliver Bartsch (O)

Institute of Human Genetics, Medical Center of the Johannes Gutenberg University Mainz, University of Mainz, Germany.

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Classifications MeSH