A failure in solidarity: Ethical challenges in the development and implementation of new tuberculosis technologies.
bedaquiline
delamanid
empirical bioethics
power
risks and benefits
solidarity
technology
tuberculosis
Journal
Bioethics
ISSN: 1467-8519
Titre abrégé: Bioethics
Pays: England
ID NLM: 8704792
Informations de publication
Date de publication:
06 2019
06 2019
Historique:
received:
08
05
2018
revised:
09
08
2018
accepted:
30
10
2018
pubmed:
27
1
2019
medline:
20
3
2020
entrez:
26
1
2019
Statut:
ppublish
Résumé
Prominent tuberculosis (TB) actors are invoking solidarity to motivate and justify collective action to address TB, including through intensified development and implementation (D&I) of technologies such as drugs and diagnostics. We characterize the ethical challenges associated with D&I of new TB technologies by drawing on stakeholder perspectives from 23 key informant interviews and we articulate the ethical implications of solidarity for TB technology D&I. The fundamental ethical issue facing TB technological D&I is a failure within and beyond the TB community to stand in solidarity with persons with TB in addressing the complex sociopolitical contexts of technological D&I. The failure in solidarity relates to two further ethical challenges raised by respondents: skewed power dynamics that hinder D&I and uncertainties around weighing risks and benefits associated with new technologies. Respondents identified advocacy and participatory research practices as necessary to address such challenges and to motivate sustained collective action to accelerate toward TB elimination. We present the first empirical examination of bioethical accounts of solidarity in public and global health. Our study suggests that solidarity allows us better to understand and address the ethical challenges that arrest the D&I of new TB technologies. Solidarity lends credence to policies and practices that address the relational nature of illness and health through collective action.
Identifiants
pubmed: 30681168
doi: 10.1111/bioe.12554
pmc: PMC6563531
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
557-567Subventions
Organisme : CIHR
ID : 136732
Pays : Canada
Informations de copyright
© 2019 The Authors Bioethics Published by John Wiley & Sons Ltd.
Références
Bioethics. 2019 Jun;33(5):557-567
pubmed: 30681168