Herpes zoster incidence in Germany - an indirect validation study for self-reported disease data from pretest studies of the population-based German National Cohort.


Journal

BMC infectious diseases
ISSN: 1471-2334
Titre abrégé: BMC Infect Dis
Pays: England
ID NLM: 100968551

Informations de publication

Date de publication:
30 Jan 2019
Historique:
received: 23 08 2017
accepted: 08 01 2019
entrez: 1 2 2019
pubmed: 1 2 2019
medline: 2 3 2019
Statut: epublish

Résumé

Until now, herpes zoster (HZ)-related disease burden in Germany has been estimated based on health insurance data and clinical findings. However, the validity of self-reported HZ is unclear. This study investigated the validity of self-reported herpes zoster (HZ) and its complication postherpetic neuralgia (PHN) using data from the pretest studies of the German National Cohort (GNC) in comparison with estimates based on health insurance data. Data of 4751 participants aged between 20 and 69 years from two pretest studies of the GNC carried out in 2011 and 2012 were used. Based on self-reports of physician-diagnosed HZ and PHN, age- and sex-specific HZ incidence rates and PHN proportions were estimated. For comparison, estimates based on statutory health insurance data from the German population were considered. Eleven percent (95%-CI, 10.4 to 12.3, n = 539) of the participants reported at least one HZ episode in their lifetime. Our estimated age-specific HZ incidence rates were lower than previous estimates based on statutory health insurance data. The PHN proportion in participants older than 50 years was 5.9% (1.9 to 13.9%), which was in line with estimates based on health insurance data. As age- and sex-specific patterns were comparable with that in health insurance data, self-reported diagnosis of HZ seems to be a valid instrument for overall disease trends. Possible reasons for observed differences in incidence rates are recall bias in self-reported data or overestimation in health insurance data.

Sections du résumé

BACKGROUND BACKGROUND
Until now, herpes zoster (HZ)-related disease burden in Germany has been estimated based on health insurance data and clinical findings. However, the validity of self-reported HZ is unclear. This study investigated the validity of self-reported herpes zoster (HZ) and its complication postherpetic neuralgia (PHN) using data from the pretest studies of the German National Cohort (GNC) in comparison with estimates based on health insurance data.
METHODS METHODS
Data of 4751 participants aged between 20 and 69 years from two pretest studies of the GNC carried out in 2011 and 2012 were used. Based on self-reports of physician-diagnosed HZ and PHN, age- and sex-specific HZ incidence rates and PHN proportions were estimated. For comparison, estimates based on statutory health insurance data from the German population were considered.
RESULTS RESULTS
Eleven percent (95%-CI, 10.4 to 12.3, n = 539) of the participants reported at least one HZ episode in their lifetime. Our estimated age-specific HZ incidence rates were lower than previous estimates based on statutory health insurance data. The PHN proportion in participants older than 50 years was 5.9% (1.9 to 13.9%), which was in line with estimates based on health insurance data.
CONCLUSION CONCLUSIONS
As age- and sex-specific patterns were comparable with that in health insurance data, self-reported diagnosis of HZ seems to be a valid instrument for overall disease trends. Possible reasons for observed differences in incidence rates are recall bias in self-reported data or overestimation in health insurance data.

Identifiants

pubmed: 30700258
doi: 10.1186/s12879-019-3691-2
pii: 10.1186/s12879-019-3691-2
pmc: PMC6354372
doi:

Types de publication

Journal Article Validation Study

Langues

eng

Sous-ensembles de citation

IM

Pagination

99

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Auteurs

Mahrrouz Caputo (M)

Department of Epidemiology, Helmholtz Centre for Infection Research, Inhoffenstraße 7, 38124, Braunschweig, Germany.

Johannes Horn (J)

Institute for Medical Epidemiology, Biometry, and Informatics (IMEBI), Medical Faculty of the Martin Luther University Halle-Wittenberg, Magdeburger Str. 8, 06110, Halle (Saale), Germany.

André Karch (A)

Department of Epidemiology, Helmholtz Centre for Infection Research, Inhoffenstraße 7, 38124, Braunschweig, Germany.
German Centre for Infection Research (DZIF), Hannover-Braunschweig site, Braunschweig, Germany.
Institute for Epidemiology and Social Medicine, University of Münster, Domagkstraße 3, 48149, Münster, Germany.

Manas K Akmatov (MK)

Department of Epidemiology, Helmholtz Centre for Infection Research, Inhoffenstraße 7, 38124, Braunschweig, Germany.
TWINCORE, Centre for Experimental and Clinical Infection Research, Hannover, Germany.

Heiko Becher (H)

Institute of Public Health, University Hospital Heidelberg, Im Neuenheimer Feld 324, 69120, Heidelberg, Germany.
Institute for Medical Biometry and Epidemiology, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20246, Hamburg, Germany.

Bettina Braun (B)

Institute for Epidemiology and Social Medicine, University of Münster, Domagkstraße 3, 48149, Münster, Germany.

Hermann Brenner (H)

Division of Clinical Epidemiology and Aging Research, German Cancer Research Center (DKFZ), Im Neuenheimer Feld 581, 69120, Heidelberg, Germany.
Network Aging Research University of Heidelberg, Bergheimer Straße 20, 69115, Heidelberg, Germany.

Stefanie Castell (S)

Department of Epidemiology, Helmholtz Centre for Infection Research, Inhoffenstraße 7, 38124, Braunschweig, Germany.

Beate Fischer (B)

Department of Epidemiology and Preventive Medicine, University Regensburg, Franz-Josef-Strauß-Allee 11, 93053, Regensburg, Germany.

Guido Giani (G)

German Diabetes Center (DDZ), Leibniz Research for Diabetes, Auf'm Hennekamp 65, 40225, Düsseldorf, Germany.

Kathrin Günther (K)

Leibniz Institute for Prevention Research and Epidemiology - BIPS, Achterstraße 30, 28359, Bremen, Germany.

Barbara Hoffmann (B)

Institute for Occupational, Social and Environmental Medicine, Heinrich-Heine-University of Düsseldorf, POB 101007, 40001, Düsseldorf, Germany.

Karl-Heinz Jöckel (KH)

Institute of Medical Informatics, Biometry and Epidemiology, University Hospital Essen, Hufelandstraße 55, 45147, Essen, Germany.

Thomas Keil (T)

Institute for Social Medicine, Epidemiology and Health Economics, Charité-Universitätsmedizin Berlin, Luisenstraße 57, 10117, Berlin, Germany.

Birgit Klüppelholz (B)

German Diabetes Center (DDZ), Leibniz Research for Diabetes, Auf'm Hennekamp 65, 40225, Düsseldorf, Germany.

Lilian Krist (L)

Institute for Social Medicine, Epidemiology and Health Economics, Charité-Universitätsmedizin Berlin, Luisenstraße 57, 10117, Berlin, Germany.

Michael F Leitzmann (MF)

Department of Epidemiology and Preventive Medicine, University Regensburg, Franz-Josef-Strauß-Allee 11, 93053, Regensburg, Germany.

Wolfgang Lieb (W)

Institute of Epidemiology, Christian-Albrechts-University Kiel, Niemannsweg 11, 24105, Kiel, Germany.

Jakob Linseisen (J)

Helmholtz Zentrum Munich, German Research Center for Environmental Health, Institute of Epidemiology II, Ingolstädter Landstraße 1, 85764, Neuherberg, Germany.
Chair of Epidemiology, LMU Munich, UNIKA-T, Neusässer Straße 47, 86156 , Augsburg, Germany.

Christa Meisinger (C)

Helmholtz Zentrum Munich, German Research Center for Environmental Health, Institute of Epidemiology II, Ingolstädter Landstraße 1, 85764, Neuherberg, Germany.

Susanne Moebus (S)

Centre of Urban Epidemiology, Institute of Medical Informatics, Biometry and Epidemiology, University Hospital Essen, Hufelandstraße 55, 45147, Essen, Germany.

Nadia Obi (N)

Department of Cancer Epidemiology/Clinical Cancer Registry and Institute for Medical Biometrics and Epidemiology, University Clinic Hamburg-Eppendorf, Martinistraße 52, 20246, Hamburg, Germany.

Tobias Pischon (T)

Molecular Epidemiology Research Group, Max-Delbrück-Center for Molecular Medicine in the Helmholtz Association (MDC), Robert-Rössle-Straße 10, 13125, Berlin-Buch, Germany.

Sabine Schipf (S)

Institute for Community Medicine, University Medicine Greifswald, University Medicine Greifswald, Walther-Rathenau-Str. 48, 17475, Greifswald, Germany.

Börge Schmidt (B)

Institute of Medical Informatics, Biometry and Epidemiology, University Hospital Essen, Hufelandstraße 55, 45147, Essen, Germany.

Claudia Sievers (C)

Department of Epidemiology, Helmholtz Centre for Infection Research, Inhoffenstraße 7, 38124, Braunschweig, Germany.

Astrid Steinbrecher (A)

Molecular Epidemiology Research Group, Max-Delbrück-Center for Molecular Medicine in the Helmholtz Association (MDC), Robert-Rössle-Straße 10, 13125, Berlin-Buch, Germany.

Henry Völzke (H)

Institute for Community Medicine, University Medicine Greifswald, University Medicine Greifswald, Walther-Rathenau-Str. 48, 17475, Greifswald, Germany.

Rafael Mikolajczyk (R)

Institute for Medical Epidemiology, Biometry, and Informatics (IMEBI), Medical Faculty of the Martin Luther University Halle-Wittenberg, Magdeburger Str. 8, 06110, Halle (Saale), Germany. rafael.mikolajczyk@uk-halle.de.
German Centre for Infection Research (DZIF), Hannover-Braunschweig site, Braunschweig, Germany. rafael.mikolajczyk@uk-halle.de.

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