Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis.
OBSERVATIONAL STUDIES
OMERACT
OUTCOME ASSESSMENT
REGISTRIES
RHEUMATOID ARTHRITIS
Journal
The Journal of rheumatology
ISSN: 0315-162X
Titre abrégé: J Rheumatol
Pays: Canada
ID NLM: 7501984
Informations de publication
Date de publication:
09 2019
09 2019
Historique:
accepted:
18
12
2018
pubmed:
3
3
2019
medline:
21
10
2020
entrez:
3
3
2019
Statut:
ppublish
Résumé
This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis. Preliminary data and proposed next steps were outlined and discussed by participants. Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death. The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.
Identifiants
pubmed: 30824644
pii: jrheum.181076
doi: 10.3899/jrheum.181076
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM