Lewy Body Dementia Association's Research Centers of Excellence Program: Inaugural Meeting Proceedings.


Journal

Alzheimer's research & therapy
ISSN: 1758-9193
Titre abrégé: Alzheimers Res Ther
Pays: England
ID NLM: 101511643

Informations de publication

Date de publication:
13 03 2019
Historique:
entrez: 15 3 2019
pubmed: 15 3 2019
medline: 31 3 2020
Statut: epublish

Résumé

The first Lewy Body Dementia Association (LBDA) Research Centers of Excellence (RCOE) Investigator's meeting was held on December 14, 2017, in New Orleans. The program was established to increase patient access to clinical experts on Lewy body dementia (LBD), which includes dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD), and to create a clinical trials-ready network. Four working groups (WG) were created to pursue the LBDA RCOE aims: (1) increase access to high-quality clinical care, (2) increase access to support for people living with LBD and their caregivers, (3) increase knowledge of LBD among medical and allied (or other) professionals, and (4) create infrastructure for a clinical trials-ready network as well as resources to advance the study of new therapeutics.

Identifiants

pubmed: 30867052
doi: 10.1186/s13195-019-0476-1
pii: 10.1186/s13195-019-0476-1
pmc: PMC6417280
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

23

Subventions

Organisme : NINDS NIH HHS
ID : K23 NS105944
Pays : United States
Organisme : NIA NIH HHS
ID : K23 AG059891
Pays : United States
Organisme : NIA NIH HHS
ID : R01 AG048076
Pays : United States
Organisme : NIA NIH HHS
ID : U19 AG062418
Pays : United States
Organisme : NIA NIH HHS
ID : P50 AG047366
Pays : United States
Organisme : LBDA
Pays : International

Références

Int J Geriatr Psychiatry. 2017 Dec;32(12):1280-1304
pubmed: 27928840
Neurology. 2017 Jul 4;89(1):88-100
pubmed: 28592453

Auteurs

Bethany Peterson (B)

Lewy Body Dementia Association, Lilburn, USA.

Melissa Armstrong (M)

University of Florida, Gainesville, USA.

Douglas Galasko (D)

University of California, San Diego, USA.

James E Galvin (JE)

Florida Atlantic University, Boca Raton, USA.

Jennifer Goldman (J)

Rush University Medical Center, Chicago, USA.

David Irwin (D)

University of Pennsylvania, Philadelphia, USA.

Henry Paulson (H)

University of Michigan, Ann Arbor, USA.

Daniel Kaufer (D)

University of North Carolina, Chapel Hill, USA.

James Leverenz (J)

Cleveland Clinic, Cleveland, USA.

Angela Lunde (A)

Mayo Clinic campus, 200 1st Street SW, Rochester, MN, 55905, USA.

Ian G McKeith (IG)

Newcastle University, Newcastle, UK.

Andrew Siderowf (A)

University of Pennsylvania, Philadelphia, USA.

Angela Taylor (A)

Lewy Body Dementia Association, Lilburn, USA.

Katherine Amodeo (K)

University of Rochester, Rochester, USA.

Matt Barrett (M)

University of Virginia, Charlottesville, USA.

Kimiko Domoto-Reilly (K)

University of Washington, Seattle, USA.

John Duda (J)

University of Pennsylvania, Philadelphia, USA.

Stephen Gomperts (S)

Massachusetts General Hospital, Boston, USA.

Neill Graff-Radford (N)

Mayo Clinic campus, Jacksonville, FL, USA.

Samantha Holden (S)

University of Colorado, Aurora, USA.

Lawrence Honig (L)

Columbia University, New York City, USA.

Daniel Huddleston (D)

Emory University, Atlanta, USA.

Carol Lippa (C)

Thomas Jefferson University, Philadelphia, USA.

Irene Litvan (I)

University of California, San Diego, USA.

Carol Manning (C)

University of Virginia, Charlottesville, USA.

Karen Marder (K)

Columbia University, New York City, USA.

Charbel Moussa (C)

Georgetown University Medical Center, Washington, D.C., USA.

Chiadi Onyike (C)

Johns Hopkins University, Baltimore, USA.

Fernando Pagan (F)

Georgetown University Medical Center, Washington, D.C., USA.

Alexander Pantelyat (A)

Johns Hopkins University, Baltimore, USA.

Victoria Pelak (V)

University of Colorado, Aurora, USA.

Kathleen Poston (K)

Stanford University, Stanford, USA.

Joseph Quinn (J)

Oregon Health & Science University, Portland, USA.

Irene Richard (I)

University of Rochester, Rochester, USA.

Liana S Rosenthal (LS)

Johns Hopkins University, Baltimore, USA.

Marwan Sabbagh (M)

Cleveland Clinic Las Vegas, Las Vegas, USA.

Douglas Scharre (D)

The Ohio State University, Columbus, USA.

Sharon Sha (S)

Stanford University, Stanford, USA.

Holly Shill (H)

Barrow Neurological Institute, Phoenix, USA.

Yasar Torres-Yaghi (Y)

Georgetown University Medical Center, Washington, D.C., USA.

Tina Christie (T)

Lewy Body Dementia Association, Lilburn, USA.

Todd Graham (T)

Lewy Body Dementia Association, Lilburn, USA.

Ian Richards (I)

Lewy Body Dementia Association, Lilburn, USA.

Mike Koehler (M)

Lewy Body Dementia Association, Lilburn, USA.

Brad Boeve (B)

Mayo Clinic campus, 200 1st Street SW, Rochester, MN, 55905, USA. bboeve@mayo.edu.

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