Transition clinics: an observational study of themes important to young people with inflammatory bowel disease.
Inflammatory bowel disease (IBD)
children
paediatrics
transition
Journal
Translational pediatrics
ISSN: 2224-4344
Titre abrégé: Transl Pediatr
Pays: China
ID NLM: 101649179
Informations de publication
Date de publication:
Jan 2019
Jan 2019
Historique:
entrez:
19
3
2019
pubmed:
19
3
2019
medline:
19
3
2019
Statut:
ppublish
Résumé
Transition from paediatric to adult services can be stressful and potentially disruptive for adolescents diagnosed with inflammatory bowel disease (IBD). This study aimed to ascertain transition-related factors relevant to young people in New Zealand. Adolescents diagnosed with IBD prior to their 16 Initial focus groups discussions generated several key themes: these included concerns about meeting new people in unfamiliar surroundings, the importance of shared clinics and assessments for transition readiness. The subsequent transition questionnaire was completed by 53 young people (28 female and 48 with Crohn's disease). The most commonly reported difficulty by those entering transition was meeting a new doctor. This and building a new relationship/trust were the main concerns of respondents who were preparing for or within a transition process. Parental assessment of illness and readiness to transition were not thought to be as important as other factors for determining readiness for transition. The character of their new adult gastroenterologist was the factor felt most likely to make transition easy. The main concerns of these young patients with IBD, at various stages of transition, were about meeting a new team and building new relationships. Planning and conducting a structured transition process should consider these factors to optimise the process.
Sections du résumé
BACKGROUND
BACKGROUND
Transition from paediatric to adult services can be stressful and potentially disruptive for adolescents diagnosed with inflammatory bowel disease (IBD). This study aimed to ascertain transition-related factors relevant to young people in New Zealand.
METHODS
METHODS
Adolescents diagnosed with IBD prior to their 16
RESULTS
RESULTS
Initial focus groups discussions generated several key themes: these included concerns about meeting new people in unfamiliar surroundings, the importance of shared clinics and assessments for transition readiness. The subsequent transition questionnaire was completed by 53 young people (28 female and 48 with Crohn's disease). The most commonly reported difficulty by those entering transition was meeting a new doctor. This and building a new relationship/trust were the main concerns of respondents who were preparing for or within a transition process. Parental assessment of illness and readiness to transition were not thought to be as important as other factors for determining readiness for transition. The character of their new adult gastroenterologist was the factor felt most likely to make transition easy.
CONCLUSIONS
CONCLUSIONS
The main concerns of these young patients with IBD, at various stages of transition, were about meeting a new team and building new relationships. Planning and conducting a structured transition process should consider these factors to optimise the process.
Identifiants
pubmed: 30881902
doi: 10.21037/tp.2019.01.04
pii: tp-08-01-83
pmc: PMC6382499
doi:
Types de publication
Journal Article
Langues
eng
Pagination
83-89Déclaration de conflit d'intérêts
Conflicts of Interest: The authors have no conflicts of interest to declare.
Références
J Pediatr Gastroenterol Nutr. 2002 Mar;34(3):245-8
pubmed: 11964946
Inflamm Bowel Dis. 2006 Jan;12(1):70-3
pubmed: 16374262
Gastroenterol Clin Biol. 2008 May;32(5 Pt 1):451-9
pubmed: 18472377
J Pediatr Gastroenterol Nutr. 2009 Jan;48(1):61-5
pubmed: 19172125
Clin Endocrinol (Oxf). 2009 Sep;71(3):346-50
pubmed: 19178523
Pediatrics. 2010 Mar;125(3):566-73
pubmed: 20176665
Inflamm Bowel Dis. 2011 Jan;17(1):423-39
pubmed: 20564651
J Crohns Colitis. 2011 Dec;5(6):509-19
pubmed: 22115368
World J Gastroenterol. 2012 Nov 7;18(41):5862-9
pubmed: 23139601
Nat Rev Gastroenterol Hepatol. 2014 Feb;11(2):88-98
pubmed: 24345891
Intern Med J. 2014 May;44(5):490-6
pubmed: 24589174
J Paediatr Child Health. 2015 Mar;51(3):266-70
pubmed: 25039307
Inflamm Bowel Dis. 2015 Jul;21(7):1641-51
pubmed: 25966837
J Adolesc Health. 2015 Aug;57(2):212-7
pubmed: 26206442
Patient Educ Couns. 2016 Mar;99(3):421-428
pubmed: 26597543
Inflamm Bowel Dis. 2016 Sep;22(9):2238-44
pubmed: 27482976
Eur J Gastroenterol Hepatol. 2017 Jul;29(7):831-837
pubmed: 28230561
Inflamm Bowel Dis. 2017 Aug;23(8):1418-1424
pubmed: 28570430
J Pediatr Gastroenterol Nutr. 2018 Feb;66(2):e45-e50
pubmed: 28727653
Frontline Gastroenterol. 2018 Jan;9(1):37-44
pubmed: 29484159
J Pediatr Nurs. 2018 Mar - Apr;39:49-54
pubmed: 29525216
Inflamm Bowel Dis. 2019 Jan 1;25(1):45-55
pubmed: 29893932
Pediatr Gastroenterol Hepatol Nutr. 2019 Jan;22(1):28-40
pubmed: 30671371
J Adolesc Health. 1993 Nov;14(7):570-6
pubmed: 8312295