The Experience of people with rheumatoid arthritis living with fatigue: a qualitative metasynthesis.
impact
interview
long-term condition
outcome
symptom
tiredness
Journal
BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874
Informations de publication
Date de publication:
20 03 2019
20 03 2019
Historique:
entrez:
23
3
2019
pubmed:
23
3
2019
medline:
31
3
2020
Statut:
epublish
Résumé
To identify, appraise and synthesise qualitative studies on the experience of living with rheumatoid arthritis (RA)-related fatigue. We conducted a qualitative metasynthesis encompassing a systematic literature search in February 2017, for studies published in the past 15 years, in PubMed, Cumulative Index to Nursing and Allied Health Literature (CINAHL), Embase, SveMed, PsychINFO and Web of Science. To be included, the studies had to report the experience of living with fatigue among adults with RA. The analysis and synthesis followed Malterud's systematic text condensation. Eight qualitative articles were included, based on 212 people with RA (69% women) and aged between 20 and 83 years old. The synthesis resulted in the overall theme 'A vicious circle of an unpredictable symptom'. In addition, the synthesis derived four subthemes: 'being alone with fatigue'; 'time as a challenge'; 'language as a tool for increased understanding' and 'strategies to manage fatigue'. Fatigue affects all areas of everyday life for people with RA. They strive to plan and prioritise, pace, relax and rest. Furthermore, they try to make use of a variety of words and metaphors to explain to other people that they experience that RA-related fatigue is different from normal tiredness. Despite this, people with RA-related fatigue experience feeling alone with their symptom and they develop their own strategies to manage fatigue in their everyday life. The unpredictability of RA-related fatigue is dominant, pervasive and is experienced as a vicious circle, which can be described in relation to its physical, cognitive, emotional and social impact. It is important for health professionals to acknowledge and address the impact of fatigue on the patients' everyday lives. Support from health professionals to manage fatigue and develop strategies to increase physical activity and maintain work is important for people with RA-related fatigue.
Identifiants
pubmed: 30898808
pii: bmjopen-2018-024338
doi: 10.1136/bmjopen-2018-024338
pmc: PMC6475175
doi:
Types de publication
Journal Article
Systematic Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
e024338Informations de copyright
© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
Déclaration de conflit d'intérêts
Competing interests: None declared.
Références
Arthritis Care Res (Hoboken). 2012 Apr;64(4):494-501
pubmed: 22162339
J Rheumatol. 2007 May;34(5):1171-3
pubmed: 17477481
Rheumatol Int. 2015 Oct;35(10):1655-64
pubmed: 25947325
Ann Rheum Dis. 2016 Apr;75(4):715-20
pubmed: 26314921
Rheumatology (Oxford). 2009 Mar;48(3):207-9
pubmed: 18927188
Arthritis Care Res (Hoboken). 2010 Nov;62(11):1559-68
pubmed: 20583112
Musculoskeletal Care. 2012 Mar;10(1):29-38
pubmed: 22213280
Arthritis Care Res (Hoboken). 2015 Aug;67(8):1054-62
pubmed: 25624016
Clin Rheumatol. 2013 May;32(5):557-66
pubmed: 23292480
Disabil Rehabil. 2019 Jun;41(13):1536-1544
pubmed: 29390903
Arthritis Rheum. 2005 Oct 15;53(5):697-702
pubmed: 16208668
Sociol Health Illn. 1983 Jul;5(2):168-95
pubmed: 10261981
Patient. 2011;4(3):143-52
pubmed: 21766910
Clin Psychol Rev. 2015 Jul;39:16-29
pubmed: 25912978
Arthritis Rheum. 2007 Apr 15;57(3):429-39
pubmed: 17394228
Scand J Public Health. 2012 Dec;40(8):795-805
pubmed: 23221918
Int J Nurs Stud. 2008 Jul;45(7):995-1002
pubmed: 17662291
Health Psychol. 2018 Jun;37(6):530-543
pubmed: 29781654
Int J Environ Res Public Health. 2015 Oct 28;12(11):13807-22
pubmed: 26516896
Arthritis Care Res (Hoboken). 2010 Nov;62(11):1552-8
pubmed: 20496429
Qual Health Res. 2007 Jan;17(1):113-21
pubmed: 17170249
Clin Rehabil. 2014 Mar;28(3):289-99
pubmed: 24013270
J Rheumatol. 2007 May;34(5):1174-7
pubmed: 17477482
Br J Health Psychol. 2016 Nov;21(4):764-780
pubmed: 27659260
J Adv Nurs. 2009 Apr;65(4):901-11
pubmed: 19243466
Ann Rheum Dis. 2010 May;69(5):895-7
pubmed: 19854716
Ann Rheum Dis. 2011 Jun;70(6):1060-7
pubmed: 21540202
Rheumatology (Oxford). 2016 Apr;55(4):735-44
pubmed: 26683195
Cochrane Database Syst Rev. 2013 Aug 23;(8):CD008322
pubmed: 23975674
Rheumatology (Oxford). 2011 Jun;50(6):1004-6
pubmed: 20819797
Ann Rheum Dis. 2017 Sep;76(9):1603-1606
pubmed: 28584189
Int J Qual Stud Health Well-being. 2015 Oct 12;10:28578
pubmed: 26462971