Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative.
Journal
Rhinology
ISSN: 0300-0729
Titre abrégé: Rhinology
Pays: Netherlands
ID NLM: 0347242
Informations de publication
Date de publication:
01 Oct 2019
01 Oct 2019
Historique:
pubmed:
10
4
2019
medline:
14
11
2019
entrez:
10
4
2019
Statut:
ppublish
Résumé
Despite the high prevalence of chronic rhinosinusitis (CRS) and its impact on patients' quality of life, no European patient organization that advocates for patients with CRS currently exists. To fill this gap and give a voice to CRS patients, EUFOREA has created a patient advisory board, whose goal is to better understand the real-life needs of patients, to raise awareness at political level and to involve patients in the development of novel integrated solutions to accelerate access to accurate diagnosis and treatments. This report summarizes the key discussion points from the kick-off meeting of the board on the 8th June 2018 and provides an outline of the key objectives for the future.
Identifiants
pubmed: 30963145
pii: 1887
doi: 10.4193/Rhin19.012
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM