Digital Wings: Innovations in Transition Readiness for Adolescent and Young Adult Transplant Recipients [corrected].


Journal

Transplantation
ISSN: 1534-6080
Titre abrégé: Transplantation
Pays: United States
ID NLM: 0132144

Informations de publication

Date de publication:
10 2019
Historique:
pubmed: 16 4 2019
medline: 11 6 2020
entrez: 16 4 2019
Statut: ppublish

Résumé

The Johns Hopkins University School of Medicine organized 2 multistakeholder symposia on February 2, 2018 and January 11, 2019 to address the problem of high graft failure in adolescent and young adult (AYA) solid organ transplant (SOT) recipients. Participants included international experts in transplantation, behavioral psychology, patient/parent advocacy, and technology. The objectives of the symposia were as follows: (1) to identify and discuss the barriers to and facilitators of effective transfer of care for AYA SOT recipients; (2) to actively explore strategies and digital solutions to promote their successful transfer of care; and (3) to develop meaningful partnerships for the successful development, evaluation, implementation, and dissemination of these digital solutions. Additionally, data were collected from 152 AYA SOT recipients demonstrating a substantial gap in how this population uses technologies for health-related activities, alongside an increased interest in an app to help them manage their transplant.

Identifiants

pubmed: 30985578
doi: 10.1097/TP.0000000000002749
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't Research Support, U.S. Gov't, P.H.S.

Langues

eng

Sous-ensembles de citation

IM

Pagination

1970-1974

Subventions

Organisme : AHRQ HHS
ID : K08 HS023876
Pays : United States
Organisme : NIDDK NIH HHS
ID : K01 DK114388
Pays : United States

Commentaires et corrections

Type : ErratumIn

Auteurs

Douglas B Mogul (DB)

Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD.

Emily M Fredericks (EM)

Department of Pediatrics, Division of Pediatric Psychology, University of Michigan, Ann Arbor, MI.

Tammy M Brady (TM)

Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD.

Tamir Miloh (T)

Department of Pediatrics, Texas Children's Hospital, Houston, TX.

Kristin Riekert (K)

Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD.

Natalie Williams (N)

Biliary Atresia Awareness and Research, Duncan, BC, Canada.

Ryan Ford (R)

Department of Medicine, Emory University, Atlanta, GA.

Michael Fergusson (M)

Ayogo, Vancouver, BC, Canada.

Beverly Kosmach-Park (B)

Department of Transplant Surgery, UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA.

Jon Hochstein (J)

Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD.

Gayathri Naraparaju (G)

Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD.

Macey L Henderson (ML)

Department of Surgery, Johns Hopkins University School of Medicine, Baltimore, MD.
Department of Acute and Chronic Care, Johns Hopkins University School of Nursing, Baltimore, MD.

Dorry L Segev (DL)

Department of Surgery, Johns Hopkins University School of Medicine, Baltimore, MD.
Department of Epidemiology, Johns Hopkins School of Public Health, Baltimore, MD.

John F P Bridges (JFP)

Department of Surgery, Ohio State University, Columbus, OH.

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Classifications MeSH