Perceived Stress among Caregivers of Children with Autism Spectrum Disorder: A State-Wide Study.
autism spectrum disorder
caregivers
perceived stress
Journal
International journal of environmental research and public health
ISSN: 1660-4601
Titre abrégé: Int J Environ Res Public Health
Pays: Switzerland
ID NLM: 101238455
Informations de publication
Date de publication:
25 04 2019
25 04 2019
Historique:
received:
28
02
2019
revised:
15
04
2019
accepted:
24
04
2019
entrez:
28
4
2019
pubmed:
28
4
2019
medline:
21
8
2019
Statut:
epublish
Résumé
Caregivers of children with autism spectrum disorder (ASD) experience increased stress and more significant negative caregiving consequences than those with typically developing children. There is a lack of studies specifically focusing on stress among caregivers with ASD children in Asian countries. The current study examines levels of perceived stress and factors associated with it among caregivers in Kelantan, Malaysia. In a cross-sectional study, the Malay version of the Perceived Stress Scale (PSS) was administered to 227 caregivers of children with ASD. The caregivers were recruited from ASD databases in four tertiary hospitals in Kelantan and a meeting was set up during the child's follow-up in the clinic. Multiple linear regression analyses were applied to determine the predictors of perceived stress. The mean total perceived stress score was 20.84 (4.72). This was considered higher than average. Higher perceived stress was significantly predicted among caregivers who live far from the health institution, caregivers who do not own transportation to bring the child to the treatment center, and caregivers who have an ASD child with a learning disability. Caregivers of an ASD child perceived significant stress while taking care of their children. Institutions should alleviate the factors that were predicted to increase the caregivers' perceived stress to improve the quality of the lives of children and ASD families as a whole.
Sections du résumé
BACKGROUND
Caregivers of children with autism spectrum disorder (ASD) experience increased stress and more significant negative caregiving consequences than those with typically developing children. There is a lack of studies specifically focusing on stress among caregivers with ASD children in Asian countries. The current study examines levels of perceived stress and factors associated with it among caregivers in Kelantan, Malaysia.
METHODS
In a cross-sectional study, the Malay version of the Perceived Stress Scale (PSS) was administered to 227 caregivers of children with ASD. The caregivers were recruited from ASD databases in four tertiary hospitals in Kelantan and a meeting was set up during the child's follow-up in the clinic. Multiple linear regression analyses were applied to determine the predictors of perceived stress.
RESULTS
The mean total perceived stress score was 20.84 (4.72). This was considered higher than average. Higher perceived stress was significantly predicted among caregivers who live far from the health institution, caregivers who do not own transportation to bring the child to the treatment center, and caregivers who have an ASD child with a learning disability.
CONCLUSION
Caregivers of an ASD child perceived significant stress while taking care of their children. Institutions should alleviate the factors that were predicted to increase the caregivers' perceived stress to improve the quality of the lives of children and ASD families as a whole.
Identifiants
pubmed: 31027225
pii: ijerph16081468
doi: 10.3390/ijerph16081468
pmc: PMC6517964
pii:
doi:
Types de publication
Journal Article
Langues
eng
Références
Pediatrics. 2007 Feb;119 Suppl 1:S114-21
pubmed: 17272578
Behav Modif. 2009 Jul;33(4):437-51
pubmed: 19436073
J Autism Dev Disord. 2010 Feb;40(2):167-78
pubmed: 19655239
AJS. 2010 Mar;115(5):1387-434
pubmed: 20503647
J Intellect Disabil Res. 2010 Nov;54(11):992-1003
pubmed: 20868445
Community Ment Health J. 2012 Apr;48(2):232-7
pubmed: 21559922
J Autism Dev Disord. 2012 Apr;42(4):539-48
pubmed: 21590433
J Intellect Disabil. 2011 Jun;15(2):101-13
pubmed: 21750213
J Health Psychol. 2012 Jul;17(5):702-11
pubmed: 22021276
Clin Child Fam Psychol Rev. 2012 Sep;15(3):247-77
pubmed: 22869324
Autism. 2014 Feb;18(2):194-8
pubmed: 22987895
J Dev Behav Pediatr. 2013 May;34(4):262-8
pubmed: 23538932
Malays J Med Sci. 2012 Jul;19(3):43-9
pubmed: 23785249
MMWR Surveill Summ. 2014 Mar 28;63(2):1-21
pubmed: 24670961
Malays J Med Sci. 2017 Mar;24(1):81-93
pubmed: 28381931
J Health Soc Behav. 1983 Dec;24(4):385-96
pubmed: 6668417