The Use of Patient-Reported Outcomes in Patients Treated With Maintenance Hemodialysis: A Perspective.
Haemodialysis
PRO instrument
clinical trial
end stage renal disease (ESRD)
haemodialysis research
health-related quality of life (HRQoL)
patient-centered outcome
patient-reported outcome measures (PROMs)
patient-reported outcomes (PROs)
routine practice
shared decision-making
standardized outcome measure
Journal
American journal of kidney diseases : the official journal of the National Kidney Foundation
ISSN: 1523-6838
Titre abrégé: Am J Kidney Dis
Pays: United States
ID NLM: 8110075
Informations de publication
Date de publication:
09 2019
09 2019
Historique:
received:
03
08
2018
accepted:
29
01
2019
pubmed:
30
4
2019
medline:
24
3
2020
entrez:
30
4
2019
Statut:
ppublish
Résumé
There is increasing interest in the integration of patient-reported outcomes (PROs) into health care research and clinical practice for the benefit of patients with end-stage kidney disease receiving hemodialysis. In a research setting, PROs can be used as a patient-centered primary or secondary outcome in clinical studies. In routine care, PRO data may be used to support service delivery through benchmarking and audit or inform and enhance the care of the individual patient by improving patient-clinician communication. Despite evidence demonstrating the potential benefits of PROs and prioritization of these outcomes by patients, their use in kidney disease remains limited. Although there are significant methodological and operational challenges for the widespread integration of PROs, there is now consensus that this area should be at the forefront of clinical research and implementation science. We discuss the current use of PROs for patients with end-stage kidney disease receiving hemodialysis and identify a roadmap for increasing the evidence base and introducing PROs into mainstream clinical practice.
Identifiants
pubmed: 31031088
pii: S0272-6386(19)30167-2
doi: 10.1053/j.ajkd.2019.01.035
pii:
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
399-406Subventions
Organisme : Department of Health
ID : ICA-CDRF-2018-04-ST2-027
Pays : United Kingdom
Organisme : Department of Health
ID : PDF-2016-09-009
Pays : United Kingdom
Commentaires et corrections
Type : CommentIn
Type : CommentIn
Informations de copyright
Copyright © 2019 National Kidney Foundation, Inc. Published by Elsevier Inc. All rights reserved.