Cases in Precision Medicine: Concerns About Privacy and Discrimination After Genomic Sequencing.
Journal
Annals of internal medicine
ISSN: 1539-3704
Titre abrégé: Ann Intern Med
Pays: United States
ID NLM: 0372351
Informations de publication
Date de publication:
21 05 2019
21 05 2019
Historique:
pubmed:
7
5
2019
medline:
6
2
2020
entrez:
7
5
2019
Statut:
ppublish
Résumé
Patients and research participants have indicated that privacy of their genetic test results is an important concern, particularly with respect to insurance coverage. Internists and other physicians whose patients ask about legal protections for information generated by genome sequencing for clinical purposes can provide both reassurance and caution. Protections for medical information in general, as well as laws in some states that provide additional safeguards for genetic data, should reassure patients that this information will remain private. Patients themselves will need to weigh the risks versus the benefits of generating genomic data in deciding whether to undergo exome sequencing.
Identifiants
pubmed: 31060048
pii: 2732835
doi: 10.7326/M18-2666
pmc: PMC6715527
mid: NIHMS1044448
doi:
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
717-721Subventions
Organisme : NHGRI NIH HHS
ID : P50 HG007257
Pays : United States
Organisme : NHGRI NIH HHS
ID : RM1 HG007257
Pays : United States
Organisme : NHGRI NIH HHS
ID : U01 HG008680
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR001873
Pays : United States
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