Transition to Self-Management among Adolescents with Polycystic Ovary Syndrome: Parent and Adolescent Perspectives.


Journal

Journal of pediatric nursing
ISSN: 1532-8449
Titre abrégé: J Pediatr Nurs
Pays: United States
ID NLM: 8607529

Informations de publication

Date de publication:
Historique:
received: 04 04 2019
revised: 22 04 2019
accepted: 22 04 2019
pubmed: 13 5 2019
medline: 30 1 2020
entrez: 13 5 2019
Statut: ppublish

Résumé

Polycystic ovary syndrome (PCOS) is the most common endocrine disorder among females. The foundation of PCOS self-management is engaging in healthy lifestyle habits, however, there is limited literature regarding adolescents' transition to PCOS self-management. The purpose of this study, therefore, is to explore parental and adolescent views of the transition to PCOS self-management. A qualitative descriptive approach was used through focus groups (N = 4) with adolescents diagnosed with PCOS and their parents. A total of seven adolescents and eight parents participated in two focus groups each. The primary theme from the parent groups was Concerns for Transition to Self-Care with the subthemes of facilitation versus direction and recognition of personal habits. The primary theme identified from the adolescent groups was Taking Control with subthemes of managing symptoms, cognitive dissonance, support, and balance. Study findings provide insight into the experiences of adolescents with PCOS and their parents as they navigate both a family-level transition in health habits and anticipate the adolescent transition to self-management as an emerging adult. Nurses and other health care providers can help facilitate transition to self-management among adolescents with PCOS by encouraging increased independence in health behavior decisions while they are still living at home. Middle and older adolescents who begin to take ownership of their physical activity, nutritional choices, and sleep hygiene will have a firm foundation on which to build as they transition into life beyond high school.

Identifiants

pubmed: 31079016
pii: S0882-5963(19)30195-2
doi: 10.1016/j.pedn.2019.04.024
pmc: PMC6642853
mid: NIHMS1529093
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

85-91

Subventions

Organisme : NINR NIH HHS
ID : P30 NR015335
Pays : United States

Informations de copyright

Copyright © 2019 Elsevier Inc. All rights reserved.

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Auteurs

Cara C Young (CC)

University of Texas at Austin, School of Nursing, TX, United States of America. Electronic address: cyoung@mail.nur.utexas.edu.

Lynn Rew (L)

University of Texas at Austin, School of Nursing, TX, United States of America.

Maria Monge (M)

The University of Texas at Austin, Dell Medical School, TX, United States of America.

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