Hiding in Plain Sight: Functional Neurological Disorders in the News.
Functional Movement Disorders
Functional Neurological Disorder
Media
Psychogenic Movement Disorders
Psychogenic Nonepileptic Seizures
Stigma
Journal
The Journal of neuropsychiatry and clinical neurosciences
ISSN: 1545-7222
Titre abrégé: J Neuropsychiatry Clin Neurosci
Pays: United States
ID NLM: 8911344
Informations de publication
Date de publication:
2019
2019
Historique:
pubmed:
24
5
2019
medline:
10
3
2020
entrez:
24
5
2019
Statut:
ppublish
Résumé
Functional movement and seizure disorders are still widely misunderstood and receive little public and academic attention. This is in stark contrast to their high prevalence and levels of associated disability. In an exploratory observational study, the authors examined whether the relative lack of media coverage of functional neurological disorders is in part due to misidentification in "human interest" news stories. Thirteen recent news stories from high-impact English-language media outlets that portrayed patients with complex symptoms either attributed to other diagnoses or presented as medical mysteries were identified using online keyword searches. All selected news stories contained video or still images displaying relevant symptoms. Cases were categorized into movement disorders or seizure disorders and were then independently assessed by 10 respective expert raters. For each category, one story of a patient whose symptoms were due to a well-recognized neurological disease was also included. Both the diagnostic category and the respective confidence level were reported by each rater for each case. The interrater agreement was calculated for each group of disorders. The raters confirmed almost unanimously that all presented news stories except the negative control cases portrayed misidentified functional movement or seizure disorders. The interrater agreement and average diagnostic confidence were high. Functional neurological disorders are often wrongly considered a rare medical curiosity of the past. However, these findings suggest that, while they are largely absent from public discourse, they often appear in the news incognito, hiding in plain sight.
Identifiants
pubmed: 31117907
doi: 10.1176/appi.neuropsych.19010025
pmc: PMC7291360
mid: NIHMS1594604
doi:
Types de publication
Journal Article
Observational Study
Langues
eng
Sous-ensembles de citation
IM
Pagination
361-367Subventions
Organisme : Department of Health
ID : CS-2014-14-016
Pays : United Kingdom
Organisme : Intramural NIH HHS
ID : ZIA NS002667
Pays : United States
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