NFL is a marker of treatment response in children with SMA treated with nusinersen.


Journal

Journal of neurology
ISSN: 1432-1459
Titre abrégé: J Neurol
Pays: Germany
ID NLM: 0423161

Informations de publication

Date de publication:
Sep 2019
Historique:
received: 07 01 2019
accepted: 17 05 2019
revised: 11 04 2019
pubmed: 28 5 2019
medline: 29 1 2020
entrez: 25 5 2019
Statut: ppublish

Résumé

Recently, the anti-sense oligonucleotide drug nusinersen was approved for spinal muscular atrophy (SMA) and our aim was to find a response marker for this treatment. Twelve children with SMA type 1 and two copies of the SMN2 gene were included in a consecutive single-center study. The children were sampled for CSF at baseline and every time nusinersen was given intrathecally. The neuronal biomarkers NFL and tau and the glial biomarker GFAP were measured. Motor function was assessed using CHOP INTEND. Eleven similarly aged children, who were investigated to rule out neurological or infectious disease, were used as controls. Baseline levels of NFL (4598 ± 981 vs 148 ± 39, P = 0.001), tau (939 ± 159 vs 404 ± 86, P = 0.02), and GFAP (236 ± 44 vs 108 ± 26, P = 0.02) were significantly higher in SMA children than controls. Motor function improved by nusinersen treatment in median 13 points corresponding to 5.4 points per month of treatment (P = 0.001). NFL levels typically normalized ( < 380 pg/ml) between the fourth and fifth doses [- 879.5 pg/mL/dose, 95% CI (- 1243.4, - 415.6), P = 0.0001], tau levels decreased [- 112.6 pg/mL/dose, 95% CI (- 206-7, - 18.6), P = 0.01], and minor decreases in GFAP were observed [- 16.9 pg/mL/dose, 95% CI (- 22.8, - 11.2), P = 0.02] by nusinersen treatment. Improvement in motor function correlated with reduced concentrations of NFL (rho = - 0.64, P = 0.03) and tau (rho = - 0.85, P = 0.0008) but not GFAP. Nusinersen normalized the axonal damage marker NFL and correlated with motor improvement in children with SMA. NFL may, therefore, be a novel biomarker to monitor treatment response early in the disease course.

Sections du résumé

BACKGROUND BACKGROUND
Recently, the anti-sense oligonucleotide drug nusinersen was approved for spinal muscular atrophy (SMA) and our aim was to find a response marker for this treatment.
METHODS METHODS
Twelve children with SMA type 1 and two copies of the SMN2 gene were included in a consecutive single-center study. The children were sampled for CSF at baseline and every time nusinersen was given intrathecally. The neuronal biomarkers NFL and tau and the glial biomarker GFAP were measured. Motor function was assessed using CHOP INTEND. Eleven similarly aged children, who were investigated to rule out neurological or infectious disease, were used as controls.
RESULTS RESULTS
Baseline levels of NFL (4598 ± 981 vs 148 ± 39, P = 0.001), tau (939 ± 159 vs 404 ± 86, P = 0.02), and GFAP (236 ± 44 vs 108 ± 26, P = 0.02) were significantly higher in SMA children than controls. Motor function improved by nusinersen treatment in median 13 points corresponding to 5.4 points per month of treatment (P = 0.001). NFL levels typically normalized ( < 380 pg/ml) between the fourth and fifth doses [- 879.5 pg/mL/dose, 95% CI (- 1243.4, - 415.6), P = 0.0001], tau levels decreased [- 112.6 pg/mL/dose, 95% CI (- 206-7, - 18.6), P = 0.01], and minor decreases in GFAP were observed [- 16.9 pg/mL/dose, 95% CI (- 22.8, - 11.2), P = 0.02] by nusinersen treatment. Improvement in motor function correlated with reduced concentrations of NFL (rho = - 0.64, P = 0.03) and tau (rho = - 0.85, P = 0.0008) but not GFAP.
CONCLUSIONS CONCLUSIONS
Nusinersen normalized the axonal damage marker NFL and correlated with motor improvement in children with SMA. NFL may, therefore, be a novel biomarker to monitor treatment response early in the disease course.

Identifiants

pubmed: 31123861
doi: 10.1007/s00415-019-09389-8
pii: 10.1007/s00415-019-09389-8
pmc: PMC6687695
doi:

Substances chimiques

Biomarkers 0
Neurofilament Proteins 0
Oligonucleotides 0
neurofilament protein L 0
nusinersen 5Z9SP3X666

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

2129-2136

Subventions

Organisme : Vetenskapsrådet
ID : NA
Organisme : Knut och Alice Wallenbergs Stiftelse
ID : NA
Organisme : Torsten Söderbergs Stiftelse
ID : NA
Organisme : FP7 Ideas: European Research Council
ID : 681712

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Auteurs

Bob Olsson (B)

Department of Psychiatry and Neurochemistry, Institute of Neuroscience and Physiology, Sahlgrenska Academy at the University of Gothenburg, V-house, Sahlgrenska University Hospital Mölndal, 431 80, Mölndal, Sweden. bob.olsson@neuro.gu.se.
Clinical Neurochemistry Laboratory, Sahlgrenska University Hospital, Mölndal, Sweden. bob.olsson@neuro.gu.se.

Lars Alberg (L)

Queen Silvia Children'S Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.

Nicholas C Cullen (NC)

Department of Psychiatry and Neurochemistry, Institute of Neuroscience and Physiology, Sahlgrenska Academy at the University of Gothenburg, V-house, Sahlgrenska University Hospital Mölndal, 431 80, Mölndal, Sweden.
Department of Neurology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.

Eva Michael (E)

Queen Silvia Children'S Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.

Lisa Wahlgren (L)

Queen Silvia Children'S Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.

Anna-Karin Kroksmark (AK)

Queen Silvia Children'S Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
Institute of Health and Care Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburgs, Sweden.

Kevin Rostasy (K)

Pediatric Neurology, Children'S Hospital Datteln, Witten/Herdecke University, Datteln, Germany.

Kaj Blennow (K)

Department of Psychiatry and Neurochemistry, Institute of Neuroscience and Physiology, Sahlgrenska Academy at the University of Gothenburg, V-house, Sahlgrenska University Hospital Mölndal, 431 80, Mölndal, Sweden.
Clinical Neurochemistry Laboratory, Sahlgrenska University Hospital, Mölndal, Sweden.

Henrik Zetterberg (H)

Department of Psychiatry and Neurochemistry, Institute of Neuroscience and Physiology, Sahlgrenska Academy at the University of Gothenburg, V-house, Sahlgrenska University Hospital Mölndal, 431 80, Mölndal, Sweden.
Clinical Neurochemistry Laboratory, Sahlgrenska University Hospital, Mölndal, Sweden.
Department of Neurodegeneration, UCL Institute of Neurology, Queen Square, London, UK.
UK Dementia Research Institute at UCL, London, UK.

Már Tulinius (M)

Queen Silvia Children'S Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.

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Classifications MeSH