Key experiences of primary social groups in Unspecified Kidney Donation.
Chronic Kidney Disease
Psychosocial
Research
Transplantation
Journal
Journal of renal care
ISSN: 1755-6686
Titre abrégé: J Ren Care
Pays: United States
ID NLM: 101392167
Informations de publication
Date de publication:
Sep 2019
Sep 2019
Historique:
received:
21
08
2018
revised:
01
01
2019
accepted:
27
01
2019
pubmed:
4
6
2019
medline:
9
6
2020
entrez:
4
6
2019
Statut:
ppublish
Résumé
The role of family members in directed kidney donation is well documented in the literature from both a physiological and psychosocial perspective. The experiences of families, or primary social groups (PSGs), where one member considers donating a kidney via unspecified altruistic kidney donation route (UKD) is poorly understood. This is pertinent as lack of family support has been identified as a potential contributor to donation withdrawal. This study aimed to explore the relevant psychosocial factors underpinning completed and uncompleted donations. A qualitative study using semi-structured interviews. Qualitative interviews were conducted in the United Kingdom with 35 individuals comprising of: 11 donors who donated their kidney altruistically and 8 of their PSG members, and 11 donors who withdrew and 5 of their PSG members. Interviews were transcribed verbatim and analysed using Framework Analysis. Two major themes were identified: (1) Supportability, which contained experiences fundamental to proceeding to donate, underpinned by four subthemes Acceptability, Awareness and Information, Family Risk and Ambivalence;(2) Seeking Resolution, contained discussions of experiences following either withdrawal from or completion of the donation, and comprised two sub-themes, Unfinished Business and Resolve. There are key differences in the experiences between those who completed their donation and those who withdrew. It is clear from this study that UKD operates within a PSG's social framework. Clinical implications suggest interventions at the level of addressing ambivalence within the PSG and the need for promotion of better psychosocial outcomes both following completion or withdrawal from donation.
Sections du résumé
BACKGROUND
BACKGROUND
The role of family members in directed kidney donation is well documented in the literature from both a physiological and psychosocial perspective. The experiences of families, or primary social groups (PSGs), where one member considers donating a kidney via unspecified altruistic kidney donation route (UKD) is poorly understood. This is pertinent as lack of family support has been identified as a potential contributor to donation withdrawal.
OBJECTIVES
OBJECTIVE
This study aimed to explore the relevant psychosocial factors underpinning completed and uncompleted donations.
DESIGN
METHODS
A qualitative study using semi-structured interviews.
PARTICIPANTS
METHODS
Qualitative interviews were conducted in the United Kingdom with 35 individuals comprising of: 11 donors who donated their kidney altruistically and 8 of their PSG members, and 11 donors who withdrew and 5 of their PSG members.
APPROACH
METHODS
Interviews were transcribed verbatim and analysed using Framework Analysis.
RESULTS
RESULTS
Two major themes were identified: (1) Supportability, which contained experiences fundamental to proceeding to donate, underpinned by four subthemes Acceptability, Awareness and Information, Family Risk and Ambivalence;(2) Seeking Resolution, contained discussions of experiences following either withdrawal from or completion of the donation, and comprised two sub-themes, Unfinished Business and Resolve.
CONCLUSIONS
CONCLUSIONS
There are key differences in the experiences between those who completed their donation and those who withdrew. It is clear from this study that UKD operates within a PSG's social framework. Clinical implications suggest interventions at the level of addressing ambivalence within the PSG and the need for promotion of better psychosocial outcomes both following completion or withdrawal from donation.
Types de publication
Journal Article
Langues
eng
Pagination
171-184Subventions
Organisme : British Renal Society & British Kidney Patients association.
ID : 990 Understanding barriers and enablers to
Informations de copyright
© 2019 European Dialysis and Transplant Nurses Association/European Renal Care Association.