Development a national minimum data set (MDS) of the information management system for disability in Iran.
Disability
Information management system
Minimum data set
Journal
Disability and health journal
ISSN: 1876-7583
Titre abrégé: Disabil Health J
Pays: United States
ID NLM: 101306633
Informations de publication
Date de publication:
10 2019
10 2019
Historique:
received:
15
09
2018
revised:
12
05
2019
accepted:
20
05
2019
pubmed:
6
6
2019
medline:
18
12
2019
entrez:
6
6
2019
Statut:
ppublish
Résumé
Disability management and policymaking require complete and valid data on disability. Development of a minimum data set (MDS) of the information management system for disability in Iran. This descriptive, cross-sectional study was performed in 2017. Data were collected from the documents of persons with disabilities data bank of the State Welfare Organization of Iran available at "payment.behzisti.net", and data elements of the Ministry of Health and Medical Education (MOHME) resources, in addition to the Internet and library. A checklist was used for data collection. The Delphi technique was applied to reach a consensus about the data elements using a questionnaire. The content validity and reliability of the questionnaire were assessed by experts' opinions and the test-retest method, respectively. An MDS of disability was developed including administrative and clinical categories with 130 and 345 data elements, respectively. Two hundred and thirty eight data elements were mandatory elements (administrative: 60, clinical: 178) and the rest were optional elements. An MDS can be a starting point for standardizing the disability data. A minimum data set has the potential to standardize the data and overcome the problem of low-quality disability data in Iran through providing consistent, complete and uniform data elements. Thus, the use of this MDS is useful in determination of the level of disability and its benefits, and in policy-making and effective planning for providing persons with disabilities with more efficient and cost-effective services.
Sections du résumé
BACKGROUND
Disability management and policymaking require complete and valid data on disability.
OBJECTIVE
Development of a minimum data set (MDS) of the information management system for disability in Iran.
METHODS
This descriptive, cross-sectional study was performed in 2017. Data were collected from the documents of persons with disabilities data bank of the State Welfare Organization of Iran available at "payment.behzisti.net", and data elements of the Ministry of Health and Medical Education (MOHME) resources, in addition to the Internet and library. A checklist was used for data collection. The Delphi technique was applied to reach a consensus about the data elements using a questionnaire. The content validity and reliability of the questionnaire were assessed by experts' opinions and the test-retest method, respectively.
RESULTS
An MDS of disability was developed including administrative and clinical categories with 130 and 345 data elements, respectively. Two hundred and thirty eight data elements were mandatory elements (administrative: 60, clinical: 178) and the rest were optional elements.
CONCLUSIONS
An MDS can be a starting point for standardizing the disability data. A minimum data set has the potential to standardize the data and overcome the problem of low-quality disability data in Iran through providing consistent, complete and uniform data elements. Thus, the use of this MDS is useful in determination of the level of disability and its benefits, and in policy-making and effective planning for providing persons with disabilities with more efficient and cost-effective services.
Identifiants
pubmed: 31164283
pii: S1936-6574(19)30101-3
doi: 10.1016/j.dhjo.2019.05.008
pii:
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
641-648Informations de copyright
Copyright © 2019 Elsevier Inc. All rights reserved.