Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders.
ADHD
Autism
Consent
Neurodevelopmental disorders
Registry
Journal
Journal of autism and developmental disorders
ISSN: 1573-3432
Titre abrégé: J Autism Dev Disord
Pays: United States
ID NLM: 7904301
Informations de publication
Date de publication:
Sep 2019
Sep 2019
Historique:
pubmed:
7
6
2019
medline:
9
11
2019
entrez:
8
6
2019
Statut:
ppublish
Résumé
The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline.
Identifiants
pubmed: 31172337
doi: 10.1007/s10803-019-04088-9
pii: 10.1007/s10803-019-04088-9
pmc: PMC6669084
mid: NIHMS1038128
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
3786-3797Subventions
Organisme : NICHD NIH HHS
ID : U54 HD079123
Pays : United States
Commentaires et corrections
Type : ErratumIn
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