"If you understand you cope better with it": the role of education in building palliative care capacity in four First Nations communities in Canada.
Adaptation, Psychological
Adult
Canada
Capacity Building
/ methods
Female
Health Education
Health Knowledge, Attitudes, Practice
/ ethnology
Health Services Research
Health Services, Indigenous
/ organization & administration
Humans
Indians, North American
/ psychology
Male
Middle Aged
Palliative Care
/ psychology
Public Health
Aboriginal
Capacity development
Community development
Education
First Nations
Indigenous
Palliative care
Public health approach
Journal
BMC public health
ISSN: 1471-2458
Titre abrégé: BMC Public Health
Pays: England
ID NLM: 100968562
Informations de publication
Date de publication:
17 Jun 2019
17 Jun 2019
Historique:
received:
21
12
2018
accepted:
15
05
2019
entrez:
19
6
2019
pubmed:
19
6
2019
medline:
29
8
2019
Statut:
epublish
Résumé
In Canada, there is a growing need to develop community-based, culturally appropriate palliative care for Indigenous people living in First Nations communities. The public health approach to palliative care, which emphasizes community-based initiatives, is especially relevant in First Nations communities because care is grounded in their distinct social and cultural context. Central to the public health approach are educational strategies that strengthen communities' capacity to care for their vulnerable members as they die. This paper presents community-based research conducted with First Nations communities in Canada that aimed to assess and address local palliative care educational needs to improve community capacity in palliative care. Participatory action research (PAR) was conducted with four First Nations communities in Canada over a six-year period (2010-2016). The research occurred in three phases. Phase 1: focus groups, interviews and surveys were employed to assess community specific needs and resources. Phase 2: recommendations were developed to guide the PAR process. Phase 3: educational resources were created to address the identified educational needs. These resources were implemented incrementally over 4 years. Ongoing process evaluation was employed, and revisions were made as required. Educational needs were identified for patients, families, community members and internal and external health care providers. A wide and comprehensive range of educational resources were created to address those needs. Those culturally appropriate educational resources are available in a very accessible and useable workbook format and are available for use by other Indigenous people and communities. This research provides an example of the public health approach and offers implementation strategies around palliative care education. This paper contributes to the international literature on the public health approach to palliative care by presenting a case study from Canada that includes: conducting a culturally appropriate assessment of educational needs, creating recommendations, facilitating development and implementation of educational resources in the community to improve community capacity in palliative care.
Sections du résumé
BACKGROUND
BACKGROUND
In Canada, there is a growing need to develop community-based, culturally appropriate palliative care for Indigenous people living in First Nations communities. The public health approach to palliative care, which emphasizes community-based initiatives, is especially relevant in First Nations communities because care is grounded in their distinct social and cultural context. Central to the public health approach are educational strategies that strengthen communities' capacity to care for their vulnerable members as they die. This paper presents community-based research conducted with First Nations communities in Canada that aimed to assess and address local palliative care educational needs to improve community capacity in palliative care.
METHODS
METHODS
Participatory action research (PAR) was conducted with four First Nations communities in Canada over a six-year period (2010-2016). The research occurred in three phases. Phase 1: focus groups, interviews and surveys were employed to assess community specific needs and resources. Phase 2: recommendations were developed to guide the PAR process. Phase 3: educational resources were created to address the identified educational needs. These resources were implemented incrementally over 4 years. Ongoing process evaluation was employed, and revisions were made as required.
RESULTS
RESULTS
Educational needs were identified for patients, families, community members and internal and external health care providers. A wide and comprehensive range of educational resources were created to address those needs. Those culturally appropriate educational resources are available in a very accessible and useable workbook format and are available for use by other Indigenous people and communities.
CONCLUSIONS
CONCLUSIONS
This research provides an example of the public health approach and offers implementation strategies around palliative care education. This paper contributes to the international literature on the public health approach to palliative care by presenting a case study from Canada that includes: conducting a culturally appropriate assessment of educational needs, creating recommendations, facilitating development and implementation of educational resources in the community to improve community capacity in palliative care.
Identifiants
pubmed: 31208402
doi: 10.1186/s12889-019-6983-y
pii: 10.1186/s12889-019-6983-y
pmc: PMC6580639
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
768Subventions
Organisme : Canadian Institutes of Health Research
ID : #105885
Pays : Canada
Références
J Health Care Poor Underserved. 1998 May;9(2):117-25
pubmed: 10073197
Aust N Z J Public Health. 1999 Apr;23(2):213-4
pubmed: 10330743
Int J Circumpolar Health. 2004 Mar;63(1):25-38
pubmed: 15139239
Age Ageing. 2005 May;34(3):218-27
pubmed: 15863407
J Pain Symptom Manage. 2007 May;33(5):483-5
pubmed: 17482034
J Pain Symptom Manage. 2007 May;33(5):486-93
pubmed: 17482035
Aust J Rural Health. 2007 Aug;15(4):264-8
pubmed: 17617091
Can Fam Physician. 2007 Sep;53(9):1459-65
pubmed: 17872874
J Palliat Care. 2007 Autumn;23(3):143-53
pubmed: 18069435
Contemp Nurse. 2007 Dec;27(1):104-6
pubmed: 18386960
J Pain Symptom Manage. 2009 Nov;38(5):767-74
pubmed: 19783399
J Palliat Care. 2010 Spring;26(1):5
pubmed: 20402178
J Palliat Care. 2010 Spring;26(1):47-53
pubmed: 20402186
Health Soc Care Community. 2010 Sep;18(5):483-91
pubmed: 20500225
Nurs Ethics. 2011 Jul;18(4):548-59
pubmed: 21673120
Can J Aging. 2012 Jun;31(2):209-22
pubmed: 22608239
BMJ Support Palliat Care. 2013 Mar;3(1):61-8
pubmed: 23585926
J Couns Psychol. 2013 Jul;60(3):353-366
pubmed: 23647387
Rural Remote Health. 2013 Apr-Jun;13(2):2339
pubmed: 23651262
Appl Nurs Res. 2013 Nov;26(4):251-6
pubmed: 23938129
QJM. 2013 Dec;106(12):1071-5
pubmed: 24082152
BMJ Support Palliat Care. 2014 Sep;4(3):231-7
pubmed: 24644195
BMJ Support Palliat Care. 2013 Mar;3(1):2-3
pubmed: 24644316
BMJ Support Palliat Care. 2011 Sep;1(2):129-33
pubmed: 24653223
BMJ Support Palliat Care. 2013 Dec;3(4):383-8
pubmed: 24950517
Palliat Support Care. 2015 Dec;13(6):1721-33
pubmed: 26073031
Palliat Med. 2016 Mar;30(3):200-11
pubmed: 26269324
BMJ Support Palliat Care. 2016 Mar;6(1):21-6
pubmed: 26832803
J Adv Nurs. 1989 May;14(5):403-10
pubmed: 2738236
Health Soc Care Community. 2018 May;26(3):e329-e336
pubmed: 28703394
Palliat Care. 2017 Jul 21;10:1178224217719441
pubmed: 28794638
Rural Remote Health. 2018 Apr;18(2):4317
pubmed: 29724108
Ann Palliat Med. 2018 Apr;7(Suppl 2):S52-S72
pubmed: 29764173
BMC Palliat Care. 2019 Feb 14;18(1):21
pubmed: 30764810