Evaluating community deliberations about health research priorities.
Adolescent
Adult
Aged
Aged, 80 and over
Community Participation
/ methods
Female
Group Processes
Health Status Disparities
Healthcare Disparities
/ organization & administration
Humans
Interviews as Topic
Male
Medically Underserved Area
Michigan
Middle Aged
Minority Groups
/ psychology
Research
/ organization & administration
Young Adult
community-based participatory research
health priorities
research priorities
resource allocation
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
08 2019
08 2019
Historique:
received:
31
12
2018
revised:
05
04
2019
accepted:
21
05
2019
pubmed:
30
6
2019
medline:
15
9
2020
entrez:
29
6
2019
Statut:
ppublish
Résumé
Engaging underrepresented communities in health research priority setting could make the scientific agenda more equitable and more responsive to their needs. Evaluate democratic deliberations engaging minority and underserved communities in setting health research priorities. Participants from underrepresented communities throughout Michigan (47 groups, n = 519) engaged in structured deliberations about health research priorities in professionally facilitated groups. We evaluated some aspects of the structure, process, and outcomes of deliberations, including representation, equality of participation, participants' views of deliberations, and the impact of group deliberations on individual participants' knowledge, attitudes, and points of view. Follow-up interviews elicited richer descriptions of these and also explored later effects on deliberators. Deliberators (age 18-88 years) overrepresented minority groups. Participation in discussions was well distributed. Deliberators improved their knowledge about disparities, but not about health research. Participants, on average, supported using their group's decision to inform decision makers and would trust a process like this to inform funding decisions. Views of deliberations were the strongest predictor of these outcomes. Follow-up interviews revealed deliberators were particularly struck by their experience hearing and understanding other points of view, sometimes surprised at the group's ability to reach agreement, and occasionally activated to volunteer or advocate. Deliberations using a structured group exercise to engage minority and underserved community members in setting health research priorities met some important criteria for a fair, credible process that could inform policy. Deliberations appeared to change some opinions, improved some knowledge, and were judged by participants worth using to inform policymakers.
Identifiants
pubmed: 31251446
doi: 10.1111/hex.12931
pmc: PMC6737773
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Langues
eng
Sous-ensembles de citation
IM
Pagination
772-784Subventions
Organisme : NIA NIH HHS
ID : R01 AG040138
Pays : United States
Organisme : NIA NIH HHS
ID : 1RO1AG040138-01
Pays : United States
Informations de copyright
© 2019 The Authors Health Expectations published by John Wiley & Sons Ltd.
Références
J Health Polit Policy Law. 1996 Spring;21(1):69-98
pubmed: 8708343
Kennedy Inst Ethics J. 2001 Jun;11(2):181-204
pubmed: 11708334
Politics Life Sci. 2005 March-September;24(1-2):43
pubmed: 17059320
J Empir Res Hum Res Ethics. 2011 Sep;6(3):3-17
pubmed: 21931233
J Health Care Poor Underserved. 2006 Aug;17(3):592-609
pubmed: 16960324
Health Aff (Millwood). 2006 Nov-Dec;25(6):1648-55
pubmed: 17102190
Gerontologist. 2004 Feb;44(1):58-67
pubmed: 14978321
Med Care. 2006 Nov;44(11):1048-53
pubmed: 17063137
Prog Community Health Partnersh. 2016;10(4):515-522
pubmed: 28569676
J Health Polit Policy Law. 2005 Aug;30(4):563-601
pubmed: 16318163
J Gen Intern Med. 2004 Aug;19(8):868-74
pubmed: 15242473
J Health Polit Policy Law. 2020 Jun 1;45(3):373-418
pubmed: 32084263
Soc Sci Med. 2007 Feb;64(4):884-96
pubmed: 17141931
Am J Bioeth. 2001 Spring;1(2):20-1
pubmed: 11951873
Health Expect. 2019 Aug;22(4):772-784
pubmed: 31251446
Res Nurs Health. 2000 Aug;23(4):334-40
pubmed: 10940958
Health Serv Res. 2017 Apr;52(2):599-615
pubmed: 27206519
J Ambul Care Manage. 2010 Jul-Sep;33(3):205-14
pubmed: 20539147
Hastings Cent Rep. 2012 Mar-Apr;42(2):24-6
pubmed: 22733327
Health Care Anal. 1999;7(2):115-29
pubmed: 15968966
Health Res Policy Syst. 2016 Feb 18;14:12
pubmed: 26892771
Clin Transl Sci. 2013 Aug;6(4):292-6
pubmed: 23919364
Soc Sci Med. 2015 Apr;131:114-21
pubmed: 25770463
Hastings Cent Rep. 2012 Mar-Apr;42(2):14-7
pubmed: 22733324
J Gen Intern Med. 2002 Feb;17(2):125-33
pubmed: 11841528
Milbank Q. 2018 Dec;96(4):675-705
pubmed: 30537366
BMJ. 2014 Jul 01;349:g4318
pubmed: 24986856
Risk Manag Healthc Policy. 2014 Aug 04;7:139-53
pubmed: 25120378
Am J Public Health. 2014 Feb;104(2):e16-31
pubmed: 24328648