Understanding stillbirth stigma: A scoping literature review.
Bereavement
Pregnancy loss
Scoping review
Social psychology
Stigma
Stillbirth
Journal
Women and birth : journal of the Australian College of Midwives
ISSN: 1878-1799
Titre abrégé: Women Birth
Pays: Netherlands
ID NLM: 101266131
Informations de publication
Date de publication:
May 2020
May 2020
Historique:
received:
19
12
2018
revised:
15
04
2019
accepted:
12
05
2019
pubmed:
13
7
2019
medline:
9
9
2020
entrez:
13
7
2019
Statut:
ppublish
Résumé
The World Health Organization, and the 2011 and 2016 Lancet Stillbirth series as well as medical and scientific literature, have all called for stillbirth stigma to be reduced. However, few studies have explored or attempted to conceptualise the meaning of stigma in the context of stillbirth. To explore the current knowledge surrounding stillbirth stigma, specifically the extent, type and experiences of bereaved parents. A five-stage scoping review framework was utilised. A search of relevant databases (MedLine, EMBASE, PsychInfo, PsychArticles, and Ovid Emcare) was undertaken with several key words related to 'stillbirth' and 'stigma.' The reference lists of included studies were also searched. A total of 23 resources met the inclusion criteria for this review. A thematic analysis regarding how stigma was conceptualised and/or experienced within results and/or discussion was employed on these studies. Five over-arching themes, with several sub-themes, were discovered: Type of stigma, identity, silence, bereaved mothers' experiences of stigma in low-income countries and transformation. Stillbirth stigma remains an under-researched topic. Few articles conceptualised the experiences of the bereaved parent within a stigma framework. However, examples of bereaved parents enduring stigma were found within the literature. Common stigmatising experiences included, bereaved parents' identities being challenged; and feelings of shame, guilt, and blame after their stillbirth. Stigmatising experiences could be different based on the bereaved parent's cultural background. Further research which attempts to conceptualise stillbirth stigma and explores those experiences from a bereaved parent perspective is needed to help inform stigma reduction strategies.
Sections du résumé
BACKGROUND
BACKGROUND
The World Health Organization, and the 2011 and 2016 Lancet Stillbirth series as well as medical and scientific literature, have all called for stillbirth stigma to be reduced. However, few studies have explored or attempted to conceptualise the meaning of stigma in the context of stillbirth.
AIM
OBJECTIVE
To explore the current knowledge surrounding stillbirth stigma, specifically the extent, type and experiences of bereaved parents.
METHODS
METHODS
A five-stage scoping review framework was utilised. A search of relevant databases (MedLine, EMBASE, PsychInfo, PsychArticles, and Ovid Emcare) was undertaken with several key words related to 'stillbirth' and 'stigma.' The reference lists of included studies were also searched.
FINDINGS
RESULTS
A total of 23 resources met the inclusion criteria for this review. A thematic analysis regarding how stigma was conceptualised and/or experienced within results and/or discussion was employed on these studies. Five over-arching themes, with several sub-themes, were discovered: Type of stigma, identity, silence, bereaved mothers' experiences of stigma in low-income countries and transformation.
DISCUSSION
CONCLUSIONS
Stillbirth stigma remains an under-researched topic. Few articles conceptualised the experiences of the bereaved parent within a stigma framework. However, examples of bereaved parents enduring stigma were found within the literature. Common stigmatising experiences included, bereaved parents' identities being challenged; and feelings of shame, guilt, and blame after their stillbirth. Stigmatising experiences could be different based on the bereaved parent's cultural background.
CONCLUSION
CONCLUSIONS
Further research which attempts to conceptualise stillbirth stigma and explores those experiences from a bereaved parent perspective is needed to help inform stigma reduction strategies.
Identifiants
pubmed: 31296472
pii: S1871-5192(18)31724-4
doi: 10.1016/j.wombi.2019.05.004
pii:
doi:
Types de publication
Journal Article
Review
Langues
eng
Pagination
207-218Informations de copyright
Copyright © 2019 Australian College of Midwives. Published by Elsevier Ltd. All rights reserved.