Our data, our society, our health: A vision for inclusive and transparent health data science in the United Kingdom and beyond.
citizen‐driven science
data flows
health data science
health systems
stakeholder involvement
transparency
Journal
Learning health systems
ISSN: 2379-6146
Titre abrégé: Learn Health Syst
Pays: United States
ID NLM: 101708071
Informations de publication
Date de publication:
Jul 2019
Jul 2019
Historique:
received:
09
10
2018
revised:
08
02
2019
accepted:
06
03
2019
entrez:
19
7
2019
pubmed:
19
7
2019
medline:
19
7
2019
Statut:
epublish
Résumé
The last 6 years have seen sustained investment in health data science in the United Kingdom and beyond, which should result in a data science community that is inclusive of all stakeholders, working together to use data to benefit society through the improvement of public health and well-being. However, opportunities made possible through the innovative use of data are still not being fully realised, resulting in research inefficiencies and avoidable health harms. In this paper, we identify the most important barriers to achieving higher productivity in health data science. We then draw on previous research, domain expertise, and theory to outline how to go about overcoming these barriers, applying our core values of inclusivity and transparency. We believe a step change can be achieved through meaningful stakeholder involvement at every stage of research planning, design, and execution and team-based data science, as well as harnessing novel and secure data technologies. Applying these values to health data science will safeguard a social licence for health data research and ensure transparent and secure data usage for public benefit.
Identifiants
pubmed: 31317072
doi: 10.1002/lrh2.10191
pii: LRH210191
pmc: PMC6628981
mid: EMS82926
doi:
Types de publication
Journal Article
Langues
eng
Pagination
e10191Subventions
Organisme : Wellcome Trust
ID : 103975
Pays : United Kingdom
Organisme : Chief Scientist Office
ID : SPHSU15
Pays : United Kingdom
Organisme : Chief Scientist Office
ID : SPHSU13
Pays : United Kingdom
Organisme : Medical Research Council
ID : MC_UU_12017/15
Pays : United Kingdom
Organisme : Chief Scientist Office
ID : SCAF/15/02
Pays : United Kingdom
Organisme : Medical Research Council
ID : MC_UU_12017/13
Pays : United Kingdom
Déclaration de conflit d'intérêts
All authors declare no conflicts of interest.
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