First European Case of Simultaneous Liver and Pancreas Transplantation as Treatment of Wolcott-Rallison Syndrome in a Small Child.


Journal

Transplantation
ISSN: 1534-6080
Titre abrégé: Transplantation
Pays: United States
ID NLM: 0132144

Informations de publication

Date de publication:
03 2020
Historique:
pubmed: 25 7 2019
medline: 2 10 2020
entrez: 24 7 2019
Statut: ppublish

Résumé

The concept of organ transplantation as treatment for complex genetic conditions, including Wolcott-Rallison syndrome (WRS), continues to show promise. Liver transplantation is essential for survival of patients with WRS, and pancreas transplantation cures their type I diabetes mellitus. The recipient, a 3-year-old girl weighing 14 kg at the time of transplantation, suffered from major complications of WRS, including repetitive liver failure episodes and poorly controlled diabetes. The patient underwent a nonacute, combined, simultaneous liver and pancreas transplantation from a pediatric donor without using the en bloc technique. Well-preserved graft functions at 2-year follow-up with normal liver and pancreas function. This is the first case report of simultaneous liver and pancreas transplantation as treatment of WRS in a small child in Europe. Two-year follow-up demonstrates that organ transplantation can halt life-threating recurrent liver failure episodes and cure type 1 diabetes.

Sections du résumé

BACKGROUND
The concept of organ transplantation as treatment for complex genetic conditions, including Wolcott-Rallison syndrome (WRS), continues to show promise. Liver transplantation is essential for survival of patients with WRS, and pancreas transplantation cures their type I diabetes mellitus.
METHODS
The recipient, a 3-year-old girl weighing 14 kg at the time of transplantation, suffered from major complications of WRS, including repetitive liver failure episodes and poorly controlled diabetes. The patient underwent a nonacute, combined, simultaneous liver and pancreas transplantation from a pediatric donor without using the en bloc technique.
RESULTS
Well-preserved graft functions at 2-year follow-up with normal liver and pancreas function.
CONCLUSIONS
This is the first case report of simultaneous liver and pancreas transplantation as treatment of WRS in a small child in Europe. Two-year follow-up demonstrates that organ transplantation can halt life-threating recurrent liver failure episodes and cure type 1 diabetes.

Identifiants

pubmed: 31335762
doi: 10.1097/TP.0000000000002869
pii: 00007890-202003000-00018
doi:

Substances chimiques

EIF2AK3 protein, human EC 2.7.11.1
eIF-2 Kinase EC 2.7.11.1

Types de publication

Case Reports Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

522-525

Références

Biason-Lauber A, Lang-Muritano M, Vaccaro T, et al. Loss of kinase activity in a patient with Wolcott-Rallison syndrome caused by a novel mutation in the EIF2AK3 gene.Diabetes2002512301–2305
Castelnau P, Le Merrer M, Diatloff-Zito C, et al. Wolcott-Rallison syndrome: a case with endocrine and exocrine pancreatic deficiency and pancreatic hypotrophy.Eur J Pediatr2000159631–633
Bin-Abbas B, Al-Mulhim A, Al-Ashwal A. Wolcott-Rallison syndrome in two siblings with isolated central hypothyroidism.Am J Med Genet2002111187–190
Habeb AM. Frequency and spectrum of Wolcott-Rallison syndrome in Saudi Arabia: a systematic review.Libyan J Med2013821137
Habeb AM, Deeb A, Johnson M, et al. Liver disease and other comorbidities in Wolcott-Rallison syndrome: different phenotype and variable associations in a large cohort.Horm Res Paediatr201583190–197
Tzakis AG, Nunnelley MJ, Tekin A, et al. Liver, pancreas and kidney transplantation for the treatment of Wolcott-Rallison syndrome.Am J Transplant201515565–567
Rivera E, Gupta S, Chavers B, et al. En bloc multiorgan transplant (liver, pancreas, and kidney) for acute liver and renal failure in a patient with Wolcott-Rallison syndrome.Liver Transpl201622371–374
Elsabbagh AM, Hawksworth J, Khan KM, et al. World’s smallest combined en bloc liver-pancreas transplantation.Pediatr Transplant201822e13082
Spehar Uroić A, Mulliqi Kotori V, Rojnić Putarek N, et al. Primary hypothyroidism and nipple hypoplasia in a girl with Wolcott-Rallison syndrome.Eur J Pediatr2014173529–531
Deeb A, Al-Zidgali F, Ofoegbu BN. Multicystic dysplastic kidney: a new association of Wolcott-Rallison syndrome.Endocrinol Diabetes Metab Case Rep20172017
Mc Kiernan PJ. Recent advances in liver transplantation for metabolic disease.J Inherit Metab Dis201740491–495

Auteurs

Johan Nordström (J)

Division of Transplantation Surgery, CLINTEC, Karolinska Institutet and Department of Transplantation Surgery, Karolinska University Hospital, Stockholm, Sweden.

Markus Lundgren (M)

Department of Clinical Sciences, Clinical Research Centre, Lund University, Malmö, Sweden.

Carl Jorns (C)

Division of Transplantation Surgery, CLINTEC, Karolinska Institutet and Department of Transplantation Surgery, Karolinska University Hospital, Stockholm, Sweden.

Björn Fischler (B)

Department of Pediatrics, Karolinska University Hospital and Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.

Henrik Arnell (H)

Department of Pediatrics, Karolinska University Hospital and Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.

Rafal Dlugosz (R)

Division of Transplantation Surgery, CLINTEC, Karolinska Institutet and Department of Transplantation Surgery, Karolinska University Hospital, Stockholm, Sweden.

John Sandberg (J)

Division of Transplantation Surgery, CLINTEC, Karolinska Institutet and Department of Transplantation Surgery, Karolinska University Hospital, Stockholm, Sweden.

Lars Wennberg (L)

Division of Transplantation Surgery, CLINTEC, Karolinska Institutet and Department of Transplantation Surgery, Karolinska University Hospital, Stockholm, Sweden.

Greg Nowak (G)

Division of Transplantation Surgery, CLINTEC, Karolinska Institutet and Department of Transplantation Surgery, Karolinska University Hospital, Stockholm, Sweden.

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