Objective measures of sleep disturbances in children with Potocki-Lupski syndrome.


Journal

American journal of medical genetics. Part A
ISSN: 1552-4833
Titre abrégé: Am J Med Genet A
Pays: United States
ID NLM: 101235741

Informations de publication

Date de publication:
10 2019
Historique:
received: 29 03 2019
revised: 05 07 2019
accepted: 10 07 2019
pubmed: 26 7 2019
medline: 4 8 2020
entrez: 26 7 2019
Statut: ppublish

Résumé

Potocki-Lupski syndrome (PTLS; MIM 610883) is a neurodevelopmental disorder caused by a microduplication, a 3.7 Mb copy number variant, mapping within chromosome 17p11.2, encompassing the dosage-sensitive RAI1 gene. Whereas RAI1 triplosensitivity causes PTLS, haploinsufficiency of RAI1 due to 17p11.2 microdeletion causes the clinically distinct Smith-Magenis syndrome (SMS; MIM 182290). Most individuals with SMS have an inversion of the melatonin cycle. Subjects with PTLS have mild sleep disturbances such as sleep apnea with no melatonin abnormalities described. Sleep patterns and potential disturbances in subjects with PTLS have not been objectively characterized. We delineated sleep characteristics in 23 subjects with PTLS who underwent a polysomnogram at Texas Children's Hospital. Eleven of these subjects (58%) completed the Child's Sleep Habits Questionnaire (CSHQ). Urinary melatonin was measured in one patient and published previously. While the circadian rhythm of melatonin in PTLS appears not to be disrupted, we identified significant differences in sleep efficiency, percentage of rapid eye movement sleep, oxygen nadir, obstructive apnea hypopnea index, and periodic limb movements between prepubertal subjects with PTLS and previously published normative data. Data from the CSHQ indicate that 64% (7/11) of parents do not identify a sleep disturbance in their children. Our data indicate that younger individuals, <10 years, with PTLS have statistically significant abnormalities in five components of sleep despite lack of recognition of substantial sleep disturbances by parents. Our data support the contention that patients with PTLS should undergo clinical evaluations for sleep disordered breathing and periodic limb movement disorder, both of which are treatable conditions.

Identifiants

pubmed: 31342617
doi: 10.1002/ajmg.a.61307
pmc: PMC6953247
mid: NIHMS1064196
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural

Langues

eng

Sous-ensembles de citation

IM

Pagination

1982-1986

Subventions

Organisme : NICHD NIH HHS
ID : U54 HD083092
Pays : United States
Organisme : NHGRI NIH HHS
ID : UM1 HG006542
Pays : United States
Organisme : NINDS NIH HHS
ID : R35 NS105078
Pays : United States
Organisme : National Institute of Child Health and Human Development
ID : K08 HD01149
Pays : International

Informations de copyright

© 2019 Wiley Periodicals, Inc.

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Auteurs

Kevin Kaplan (K)

Department of Pediatrics, Baylor College of Medicine, Houston, Texas.
Children's Sleep Center, Baylor College of Medicine, Houston, Texas.
Department of Pulmonary, Baylor College of Medicine, Houston, Texas.
Texas Children's Hospital, Baylor College of Medicine, Houston, Texas.

Caroline McCool (C)

Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, Texas.

James R Lupski (JR)

Department of Pediatrics, Baylor College of Medicine, Houston, Texas.
Texas Children's Hospital, Baylor College of Medicine, Houston, Texas.
Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, Texas.
Human Genome Sequencing Center, Baylor College of Medicine, Houston, Texas.

Daniel Glaze (D)

Department of Pediatrics, Baylor College of Medicine, Houston, Texas.
Children's Sleep Center, Baylor College of Medicine, Houston, Texas.
Texas Children's Hospital, Baylor College of Medicine, Houston, Texas.
Human Genome Sequencing Center, Baylor College of Medicine, Houston, Texas.
Department of Neurology, Baylor College of Medicine, Houston, Texas.

Lorraine Potocki (L)

Texas Children's Hospital, Baylor College of Medicine, Houston, Texas.
Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, Texas.

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