European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards.
bioethics
electronic personal health records
ethical
legal and social issues (ELSI)
medical records
migration
values
vulnerabilities
Journal
Developing world bioethics
ISSN: 1471-8847
Titre abrégé: Dev World Bioeth
Pays: England
ID NLM: 101120122
Informations de publication
Date de publication:
03 2020
03 2020
Historique:
received:
25
03
2019
revised:
30
06
2019
accepted:
02
07
2019
pubmed:
2
8
2019
medline:
31
10
2020
entrez:
2
8
2019
Statut:
ppublish
Résumé
The effective collection and management of personal data of rapidly migrating populations is important for ensuring adequate healthcare and monitoring of a displaced peoples' health status. With developments in ICT data sharing capabilities, electronic personal health records (ePHRs) are increasingly replacing less transportable paper records. ePHRs offer further advantages of improving accuracy and completeness of information and seem tailored for rapidly displaced and mobile populations. Various emerging initiatives in Europe are seeking to develop migrant-centric ePHR responses. This paper highlights their importance and benefits, but also identifies a number of significant ethical, legal and social issues (ELSI) and challenges to their design and implementation, regarding (1) the kind of information that should be stored, (2) who should have access to information, and (3) potential misuse of information. These challenges need to be urgently addressed to make possible the beneficial use of ePHRs for vulnerable migrants in Europe.
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
27-37Informations de copyright
© 2019 John Wiley & Sons Ltd.