Patient engagement in the development of best practices for transitions from hospital to home: a scoping review.


Journal

BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874

Informations de publication

Date de publication:
05 08 2019
Historique:
entrez: 7 8 2019
pubmed: 7 8 2019
medline: 1 9 2020
Statut: epublish

Résumé

To explore the extent of patient engagement in the development of best practice reports related to transitions from hospital to home. Scoping review. Electronic databases (MEDLINE, EMBASE, CINAHL, Scopus, Trip Database, DynaMed Plus and Public Health Plus) and multiple provincial regulatory agency and healthcare organisation websites. We included best practice reports related to the transition from hospital to a long-term care facility, community dwelling or rehabilitation centre. We included documents disseminated in English between 1947 and 2019. Two independent reviewers screened for eligibility and one extracted and analysed data using a data extraction tool we developed based on established patient engagement frameworks. Only records actively engaging patients were analysed (n=11). The methodological quality of actively engaging patients was assessed using domain 2 (item 5) of stakeholder involvement from the Appraisal of Guidelines for Research and Evaluation II (AGREE II) tool. The search yielded 1921 citations of which 23 met the inclusion criteria and were included for narrative synthesis. These were disseminated between 1995 and 2019, with 18 (78%) published after 2010. Most were conducted in North America (USA 43%, Canada 22%), Europe (UK 30%) and Australia (4%). Eleven (48%) actively involved patients, of which only two involved patients across all stages of development. Most involved patients through direct or indirect consultation. The mean AGREE II domain 2 item 5 score (of those that actively engaged patients) was 5.9 out of 7. Only half of existing best practice reports related to the transition from hospital to home actively involved patients in report development. However, the extent of patient engagement has been increasing over time. More organisations should strive to engage patients throughout the best practice development process and provide patients with opportunities for shared leadership.

Identifiants

pubmed: 31383707
pii: bmjopen-2019-029693
doi: 10.1136/bmjopen-2019-029693
pmc: PMC6687029
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

e029693

Informations de copyright

© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Grace Zhao (G)

MD Program, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.

Carol Kennedy (C)

Quality Standards, Evidence Development and Standards, Health Quality Ontario, Toronto, Ontario, Canada.

Gracia Mabaya (G)

Quality Standards, Evidence Development and Standards, Health Quality Ontario, Toronto, Ontario, Canada.

Karen Okrainec (K)

Department of Medicine, University Health Network and University of Toronto, Toronto, Ontario, Canada.

Tara Kiran (T)

Quality Standards, Evidence Development and Standards, Health Quality Ontario, Toronto, Ontario, Canada.
Department of Family and Community Medicine, St. Michael's Hospital and University of Toronto, Toronto, Ontario, Canada.
Centre for Urban Health Solutions, Li Ka Shing Knowledge Institute, Toronto, Ontario, Canada.

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