Survey of U.S. adults with spina bifida.
Adolescent
Adult
Aged
Aged, 80 and over
Cross-Sectional Studies
Disabled Persons
Female
Humans
Male
Middle Aged
Odds Ratio
Pain
/ etiology
Self-Help Devices
/ adverse effects
Skin Diseases
/ etiology
Spinal Dysraphism
/ complications
Surveys and Questionnaires
United States
Urinary Tract Infections
/ etiology
Wheelchairs
/ adverse effects
Young Adult
Cross-sectional
Disability
Epidemiology
Spina bifida
Surveys
Journal
Disability and health journal
ISSN: 1876-7583
Titre abrégé: Disabil Health J
Pays: United States
ID NLM: 101306633
Informations de publication
Date de publication:
04 2020
04 2020
Historique:
received:
16
04
2019
revised:
12
07
2019
accepted:
26
07
2019
pubmed:
11
8
2019
medline:
23
12
2020
entrez:
11
8
2019
Statut:
ppublish
Résumé
Spina Bifida (SB) is one of the most common birth defects and causes of permanent disability in the United States (US), with approximately 3.5 cases per 10,000 live births. To identify complications associated with SB related to skin breakdown, pain, and urinary tract infections (UTIs), and to examine socio-demographic differences related to these complications. Exploratory cross-sectional study via online of a national US convenience sample of adults with SB. We collected 1485 survey responses, of which 852 had complete, useable data. Skin breakdown in one or more locations during the past year was reported by 43.1%. After controlling for socio-demographic characteristics, only mobility variables remained significant predictors of skin breakdown (assistive device use OR = 3.119, 95% CI: 1.749, 5.564; using a wheelchair OR = 6.336, 95% CI: 3.442, 11.662). Pain in past seven days was reported by 46.9%. Single respondents (OR = 0.621; 95% CI: 0.419, 0.921) and those with at least a Bachelor's degree (vs high school degree or less, OR = 0.468; 95% CI: 0.283, 0.774) were less likely, and those using assistive devices were significantly more likely (OR = 1.960; 95% CI: 1.163, 3.303), to report pain. About one-third (32.7%) reported having a UTI within the past 12 months. Notably, almost half (49.6%) of respondents did not answer this question. The presence of UTIs was not significantly related to any socio-demographic characteristics assessed. Adults with SB in the US live with a wide range of complications which are potentially under-monitored, with predictors of complications that require further research.
Sections du résumé
BACKGROUND
Spina Bifida (SB) is one of the most common birth defects and causes of permanent disability in the United States (US), with approximately 3.5 cases per 10,000 live births.
OBJECTIVE
To identify complications associated with SB related to skin breakdown, pain, and urinary tract infections (UTIs), and to examine socio-demographic differences related to these complications.
METHODS
Exploratory cross-sectional study via online of a national US convenience sample of adults with SB.
RESULTS
We collected 1485 survey responses, of which 852 had complete, useable data. Skin breakdown in one or more locations during the past year was reported by 43.1%. After controlling for socio-demographic characteristics, only mobility variables remained significant predictors of skin breakdown (assistive device use OR = 3.119, 95% CI: 1.749, 5.564; using a wheelchair OR = 6.336, 95% CI: 3.442, 11.662). Pain in past seven days was reported by 46.9%. Single respondents (OR = 0.621; 95% CI: 0.419, 0.921) and those with at least a Bachelor's degree (vs high school degree or less, OR = 0.468; 95% CI: 0.283, 0.774) were less likely, and those using assistive devices were significantly more likely (OR = 1.960; 95% CI: 1.163, 3.303), to report pain. About one-third (32.7%) reported having a UTI within the past 12 months. Notably, almost half (49.6%) of respondents did not answer this question. The presence of UTIs was not significantly related to any socio-demographic characteristics assessed.
CONCLUSIONS
Adults with SB in the US live with a wide range of complications which are potentially under-monitored, with predictors of complications that require further research.
Identifiants
pubmed: 31399347
pii: S1936-6574(19)30123-2
doi: 10.1016/j.dhjo.2019.100833
pii:
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
100833Informations de copyright
Copyright © 2019 The Authors. Published by Elsevier Inc. All rights reserved.