The burden of disease for pituitary patients.

Acromegaly / epidemiology Adenoma / diagnosis Cost of Illness Humans Pituitary Neoplasms / diagnosis Quality of Life
Cushing acromegaly endoscopic surgery non-functioning pituitary adenoma prolactinoma quality of life

Journal

Best practice & research. Clinical endocrinology & metabolism
ISSN: 1878-1594
Titre abrégé: Best Pract Res Clin Endocrinol Metab
Pays: Netherlands
ID NLM: 101120682

Informations de publication

Date de publication:
04 2019
Historique:
pubmed: 14 8 2019
medline: 15 1 2020
entrez: 14 8 2019
Statut: ppublish

Résumé

Pituitary diseases are rare conditions with severe chronic multiorgan and multisystemic morbidity requiring complex multidisciplinary treatment and usually life-long drug treatment. Most cases are caused by functioning or non-functioning pituitary adenoma. From the patient's perspective, the burden of disease is caused by the tumour itself and associated compression symptoms, interventions, hormone excess and deficiencies, systemic manifestations of these endocrine abnormalities and general psychosocial issues that can manifest in patients with a chronic condition. In this review, patient burden is classified according to classic endocrine syndromes, with burden at diagnosis and after long-term remission, and also within the framework of value-based health care and the conceptual model of wellbeing. The recently developed patient-reported outcome measurement tool that helps to evaluate burden of patients is also discussed.

Identifiants

DOI: 10.1016/j.beem.2019.101309 PMID: 31405752
pubmed: 31405752
pii: S1521-690X(19)30060-0
doi: 10.1016/j.beem.2019.101309
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

101309

Informations de copyright

Copyright © 2019 Elsevier Ltd. All rights reserved.

Auteurs

Nienke R Biermasz (NR)

Leiden University Medical Center, Department of Medicine, Division of Endocrinology, Center of Endocrine Tumors Leiden, Albinusdreef 2, 2333 ZA, Leiden, the Netherlands. Electronic address: nrbiermasz@lumc.nl.

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Classifications MeSH

questionsmedicales.fr › Maladies endocriniennes › Maladies de l'hypophyse › Hyperpituitarisme › Acromégalie › The burden of disease for pituitary patients.
questionsmedicales.fr › Tumeurs › Tumeurs par type histologique › Tumeurs épithéliales épidermoïdes et glandulaires › Adénomes › The burden of disease for pituitary patients.
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Collecte de données › Enquêtes et questionnaires › Enquêtes de santé › Indicateurs d'état de santé › Coûts indirects de la maladie › The burden of disease for pituitary patients.
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › The burden of disease for pituitary patients.
questionsmedicales.fr › Maladies endocriniennes › Maladies de l'hypophyse › Tumeurs de l'hypophyse › The burden of disease for pituitary patients.
questionsmedicales.fr › Environnement et santé publique › Santé publique › Mesures épidémiologiques › Démographie › État de santé › Qualité de vie › The burden of disease for pituitary patients.