Mothers' Perceived Barriers to and Recommendations for Health Care Appointment Keeping for Children Who Have Cerebral Palsy.
access to
cerebral palsy
children
disability
health and well-being
health care
lived experience
mothering
mothers
qualitative research
rehabilitation
Journal
Global qualitative nursing research
ISSN: 2333-3936
Titre abrégé: Glob Qual Nurs Res
Pays: United States
ID NLM: 101666563
Informations de publication
Date de publication:
Historique:
received:
08
02
2019
revised:
12
07
2019
accepted:
16
07
2019
entrez:
28
8
2019
pubmed:
28
8
2019
medline:
28
8
2019
Statut:
epublish
Résumé
Children with cerebral palsy (CP) require ongoing rehabilitation services to address complex health care needs. Attendance at appointments ensures continuity of care and improves health and well-being. The study's aim was to gain insight into mothers' perspectives of the factors associated with nonattendance. A qualitative descriptive design was conducted to identify barriers and recommendations for appointment keeping. Semi-structured interviews were conducted with 15 mothers of children with CP. Data underwent inductive qualitative analysis. Mothers provided rich context regarding barriers confronted for appointment keeping-transportation and travel, competing priorities for the child and family, and health services. Mothers' recommendations for improving the experience of attending appointments included virtual care services, transportation support, multimethod scheduling and appointment reminders, extended service hours, and increased awareness among staff of family barriers to attendance. The results inform services/policy strategies to facilitate appointment keeping, thereby promoting access to ongoing rehabilitation services for children with CP.
Identifiants
pubmed: 31453266
doi: 10.1177/2333393619868979
pii: 10.1177_2333393619868979
pmc: PMC6696835
doi:
Types de publication
Journal Article
Langues
eng
Pagination
2333393619868979Déclaration de conflit d'intérêts
Declaration of Conflicting Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Références
Int J Med Inform. 2019 Feb;122:7-12
pubmed: 30623786
Eura Medicophys. 2005 Jun;41(2):111-23
pubmed: 16200026
Appl Clin Inform. 2014 Sep 24;5(3):836-60
pubmed: 25298821
Dev Med Child Neurol Suppl. 2007 Feb;109:8-14
pubmed: 17370477
Arch Dis Child Fetal Neonatal Ed. 1998 Sep;79(2):F83-7
pubmed: 9828731
Swiss Med Wkly. 2007 Dec 1;137(47-48):677-81
pubmed: 18058276
J Asthma. 2005 Sep;42(7):555-9
pubmed: 16169788
Clin Pediatr (Phila). 2014 Apr;53(4):356-63
pubmed: 24275216
Health Policy. 2018 Apr;122(4):412-421
pubmed: 29482948
Child Care Health Dev. 2014 Mar;40(2):275-82
pubmed: 23363242
Palliat Med. 2010 Jun;24(4):435-44
pubmed: 20015918
Arch Pediatr Adolesc Med. 2002 Jan;156(1):86-7
pubmed: 11772199
Open J Nurs. 2014 Dec 1;4(13):912-919
pubmed: 25767743
Pediatrics. 2005 Jun;115(6):e626-36
pubmed: 15930188
Arch Phys Med Rehabil. 2007 Jun;88(6):696-702
pubmed: 17532889
J Dermatolog Treat. 2005 Apr;16(2):113-6
pubmed: 16019626
Child Care Health Dev. 2014 Mar;40(2):250-8
pubmed: 23294101
Pediatr Dermatol. 2007 Mar-Apr;24(2):113-7
pubmed: 17461803
Fam Pract. 2014 Feb;31(1):111-7
pubmed: 24243869
J Pediatr Health Care. 2017 Jan - Feb;31(1):104-110
pubmed: 27291938
Pediatr Allergy Immunol. 2008 Sep;19(6):559-63
pubmed: 18208462
J Telemed Telecare. 2011;17(7):358-64
pubmed: 21933898
Res Nurs Health. 2000 Aug;23(4):334-40
pubmed: 10940958
BMC Pulm Med. 2009 Apr 14;9:12
pubmed: 19366453
PLoS Med. 2013;10(1):e1001363
pubmed: 23458994
Matern Child Health J. 2011 Aug;15(6):794-805
pubmed: 20640492
J Adolesc Health. 2008 Jul;43(1):38-45
pubmed: 18565436
Psychiatr Serv. 2010 Jul;61(7):657-9
pubmed: 20591998
Urol Pract. 2017 Jul;4(4):290-295
pubmed: 37592649
Pediatr Nurs. 2016 Jul-Aug;42(4):181-8
pubmed: 29406630
Clin Pediatr (Phila). 2015 Sep;54(10):976-82
pubmed: 25676833
J Dev Behav Pediatr. 2012 Nov-Dec;33(9):685-97
pubmed: 23095496
J Child Neurol. 2015 Sep;30(10):1295-9
pubmed: 25503257
J Med Genet. 2000 Oct;37(10):810-5
pubmed: 11183191
Scott Med J. 2010 Feb;55(1):17-9
pubmed: 20218274
BMJ Qual Saf. 2015 Jun;24(6):377-84
pubmed: 25862756
Paediatr Child Health. 2017 Jun;22(3):164-165
pubmed: 29479206
Matern Child Health J. 2011 Nov;15(8):1228-37
pubmed: 21057865
Child Care Health Dev. 2014 Nov;40(6):797-805
pubmed: 24134800
Child Care Health Dev. 2015 Sep;41(5):722-33
pubmed: 25272331
J Pediatr Health Care. 1999 Jul-Aug;13(4):178-82
pubmed: 10690082
J Pediatr. 2014 Jun;164(6):1384-9
pubmed: 24612905
Community Ment Health J. 2009 Feb;45(1):78-84
pubmed: 18807182
Res Dev Disabil. 2011 Nov-Dec;32(6):2714-23
pubmed: 21705193