Patient and Family Advisory Councils for Research: Recruiting and Supporting Members From Diverse and Hard-to-Reach Communities.
Journal
The Journal of nursing administration
ISSN: 1539-0721
Titre abrégé: J Nurs Adm
Pays: United States
ID NLM: 1263116
Informations de publication
Date de publication:
Oct 2019
Oct 2019
Historique:
pubmed:
7
9
2019
medline:
24
9
2019
entrez:
7
9
2019
Statut:
ppublish
Résumé
To describe strategies to recruit and support members from hard-to-reach groups on research-focused Patient and Family Advisory Councils (PFACs). Ensuring diverse representation of members of research PFACs is challenging, and few studies have given attention to addressing this problem. A qualitative study was conducted using 8 focus groups and 19 interviews with 80 PFAC members and leaders, hospital leaders, and researchers. Recruitment recommendations were: 1) utilizing existing networks; 2) going out to the community; 3) accessing outpatient clinics; and 4) using social media. Strategies to support inclusion were: 1) culturally appropriate communication methods; 2) building a sense of community between PFAC members; 3) equalizing roles between community members/leaders; 4) having a diverse PFAC leadership team; and 5) setting transparent expectations for PFAC membership. Increasing the diversity of research PFACs is a priority, and it is important to determine how best to engage groups that have been traditionally underrepresented.
Sections du résumé
OBJECTIVE
OBJECTIVE
To describe strategies to recruit and support members from hard-to-reach groups on research-focused Patient and Family Advisory Councils (PFACs).
BACKGROUND
BACKGROUND
Ensuring diverse representation of members of research PFACs is challenging, and few studies have given attention to addressing this problem.
METHODS
METHODS
A qualitative study was conducted using 8 focus groups and 19 interviews with 80 PFAC members and leaders, hospital leaders, and researchers.
RESULTS
RESULTS
Recruitment recommendations were: 1) utilizing existing networks; 2) going out to the community; 3) accessing outpatient clinics; and 4) using social media. Strategies to support inclusion were: 1) culturally appropriate communication methods; 2) building a sense of community between PFAC members; 3) equalizing roles between community members/leaders; 4) having a diverse PFAC leadership team; and 5) setting transparent expectations for PFAC membership.
CONCLUSION
CONCLUSIONS
Increasing the diversity of research PFACs is a priority, and it is important to determine how best to engage groups that have been traditionally underrepresented.
Identifiants
pubmed: 31490796
doi: 10.1097/NNA.0000000000000790
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM