The patient journey: a voyage from diagnosis to hidradenitis suppurativa multidisciplinary unit.
Journal
Journal of the European Academy of Dermatology and Venereology : JEADV
ISSN: 1468-3083
Titre abrégé: J Eur Acad Dermatol Venereol
Pays: England
ID NLM: 9216037
Informations de publication
Date de publication:
Oct 2019
Oct 2019
Historique:
received:
07
04
2019
accepted:
08
07
2019
entrez:
20
9
2019
pubmed:
20
9
2019
medline:
3
3
2020
Statut:
ppublish
Résumé
Hidradenitis suppurativa (HS) is an inflammatory, recurrent and debilitating chronic skin disease that is often worsened by comorbidities, with a destructive impact on the social and working life of the patient. The low awareness of patients and clinicians regarding HS, together with weak coordination between specialists who manage the clinical care of these patients, may result in a burdening diagnostic and therapeutic delay, lowering efficacy of therapies and worsening prognosis and patients' QoL. To rule out these critical aspects, a HS-Multidisciplinary Unit with a hierarchical organization is proposed. Based on previously published models of a multidisciplinary unit, a hierarchical structure of a HS-dedicated multidisciplinary unit was designed. In this model, an operational core constituted by four healthcare professionals constantly working as team, is supported by a large panel of consultants, local dermatologists and general practitioners, helping in HS patient management. This standardization would imply an optimization of professional resources, an amelioration of patient's quality of life, and a shortening of patient journey.
Sections du résumé
BACKGROUND
BACKGROUND
Hidradenitis suppurativa (HS) is an inflammatory, recurrent and debilitating chronic skin disease that is often worsened by comorbidities, with a destructive impact on the social and working life of the patient. The low awareness of patients and clinicians regarding HS, together with weak coordination between specialists who manage the clinical care of these patients, may result in a burdening diagnostic and therapeutic delay, lowering efficacy of therapies and worsening prognosis and patients' QoL.
OBJECTIVES
OBJECTIVE
To rule out these critical aspects, a HS-Multidisciplinary Unit with a hierarchical organization is proposed.
METHODS
METHODS
Based on previously published models of a multidisciplinary unit, a hierarchical structure of a HS-dedicated multidisciplinary unit was designed.
RESULTS
RESULTS
In this model, an operational core constituted by four healthcare professionals constantly working as team, is supported by a large panel of consultants, local dermatologists and general practitioners, helping in HS patient management.
CONCLUSIONS
CONCLUSIONS
This standardization would imply an optimization of professional resources, an amelioration of patient's quality of life, and a shortening of patient journey.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
15-20Informations de copyright
© 2019 European Academy of Dermatology and Venereology.
Références
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