Patient participation in dialysis care-A qualitative study of patients' and health professionals' perspectives.
dialysis care
haemodialysis
involvement
patient participation
self-management
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
12 2019
12 2019
Historique:
received:
24
04
2019
revised:
20
07
2019
accepted:
28
08
2019
pubmed:
29
9
2019
medline:
14
8
2020
entrez:
28
9
2019
Statut:
ppublish
Résumé
End-stage renal disease (ESRD) affects a multitude of aspects in the patient's daily life, often entailing their own involvement in various aspects of the treatment. Although patient participation is a core health-care value, what the concept signifies is not yet fully known. The purpose of this paper is to conceptualize patient participation in dialysis care, depicting patients' and health-care professionals' perspectives. This explorative study employed qualitative interviews and content analysis. Seven focus group discussions engaging 42 key informants were performed, including patients, staff and managers with experience of dialysis care. In dialysis care, patient participation connotes a sharing of information and knowledge, the learning of and planning of care, including partaking in shared decisions with regards to treatment and management, and being involved in the management of one's own health-care treatment and/or self-care activities. Although these attributes were illustrated by all stakeholders, their significance varied: patients suggested that their preferences regarding primary aspects of participation vary, while staff considered patients' performance of dialysis to be the ultimate form of participation. Further, while patients considered multiple ways to execute participation, staff suggested that aspects such as sharing information were a route to, rather than actual, involvement. Without a common understanding to denote the idea of patient participation, staff and patients are exposed to a potential deficit in terms of facilitating patient participation in everyday encounters of dialysis treatment. Further studies and means to serve a mutual understanding are needed.
Sections du résumé
BACKGROUND AND OBJECTIVE
End-stage renal disease (ESRD) affects a multitude of aspects in the patient's daily life, often entailing their own involvement in various aspects of the treatment. Although patient participation is a core health-care value, what the concept signifies is not yet fully known. The purpose of this paper is to conceptualize patient participation in dialysis care, depicting patients' and health-care professionals' perspectives.
DESIGN
This explorative study employed qualitative interviews and content analysis.
SETTING AND PARTICIPANTS
Seven focus group discussions engaging 42 key informants were performed, including patients, staff and managers with experience of dialysis care.
RESULTS
In dialysis care, patient participation connotes a sharing of information and knowledge, the learning of and planning of care, including partaking in shared decisions with regards to treatment and management, and being involved in the management of one's own health-care treatment and/or self-care activities. Although these attributes were illustrated by all stakeholders, their significance varied: patients suggested that their preferences regarding primary aspects of participation vary, while staff considered patients' performance of dialysis to be the ultimate form of participation. Further, while patients considered multiple ways to execute participation, staff suggested that aspects such as sharing information were a route to, rather than actual, involvement.
CONCLUSIONS
Without a common understanding to denote the idea of patient participation, staff and patients are exposed to a potential deficit in terms of facilitating patient participation in everyday encounters of dialysis treatment. Further studies and means to serve a mutual understanding are needed.
Identifiants
pubmed: 31560830
doi: 10.1111/hex.12966
pmc: PMC6882253
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1285-1293Subventions
Organisme : Forskningsrådet i Sydöstra Sverige
ID : FORSS-751311
Pays : International
Informations de copyright
© 2019 The Authors Health Expectations published by John Wiley & Sons Ltd.
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