Community advisory boards: Experiences and common practices of clinical and translational science award programs.

Community advisory board best practices community engagement community partnerships implementation survey

Journal

Journal of clinical and translational science
ISSN: 2059-8661
Titre abrégé: J Clin Transl Sci
Pays: England
ID NLM: 101689953

Informations de publication

Date de publication:
Oct 2019
Historique:
received: 04 04 2019
revised: 23 05 2019
accepted: 30 05 2019
entrez: 30 10 2019
pubmed: 30 10 2019
medline: 30 10 2019
Statut: epublish

Résumé

Community advisory boards (CABs) are a valuable strategy for engaging and partnering with communities in research. Eighty-nine percent of Clinical and Translational Science Awardees (CTSA) responding to a 2011 survey reported having a CAB. CTSAs' experiences with CABs are valuable for informing future practice. This study was conducted to describe common CAB implementation practices among CTSAs; document perceived benefits, challenges, and contributions; and examine their progress toward desirable outcomes. A cross-CTSA collaborative team collected survey data from respondents representing academic and/or community members affiliated with CTSAs with CABs. Data representing 44 CTSAs with CABs were analyzed using descriptive statistics. A majority of respondents reported practices reflecting respect for CAB members' expertise and input such as compensation (75%), advisory purview beyond their CTSA's Community Engagement program (88%), and influence over CAB operations. Three-quarters provide members with orientation and training on roles and responsibilities and 89% reported evaluating their CAB. Almost all respondents indicated their CTSA incorporates the feedback of their CABs to some degree; over half do so a lot or completely. This study profiles practices that inform CTSAs implementing a CAB and provide an evaluative benchmark for those with existing CABs.

Identifiants

pubmed: 31660246
doi: 10.1017/cts.2019.389
pii: 00389
pmc: PMC6813515
doi:

Types de publication

Journal Article

Langues

eng

Pagination

218-226

Subventions

Organisme : NIMHD NIH HHS
ID : U54 MD002329
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR002240
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR002345
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR003107
Pays : United States

Informations de copyright

© The Association for Clinical and Translational Science 2019.

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Auteurs

M Kathryn Stewart (MK)

Health Policy and Management, Fay W. Boozman College of Public Health, Translational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USA.

Beatrice Boateng (B)

Department of Pediatrics, College of Medicine, Translational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USA.

Yvonne Joosten (Y)

Institute for Medicine and Public Health, Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University, Nashville, TN, USA.

Dana Burshell (D)

South Carolina Clinical and Translational Research Institute, Medical University of South Carolina, Charleston, SC, USA.

Hilary Broughton (H)

Institute of Clinical and Translational Sciences, Washington University in St. Louis, St. Louis, MO, USA.

Karen Calhoun (K)

Michigan Institute for Clinical and Health Research, University of Michigan, Ann Arbor, MI, USA.

Anna Huff Davis (A)

Translational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USA.

Rachel Hale (R)

Translational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USA.

Nicola Spencer (N)

Translational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USA.

Patricia Piechowski (P)

Michigan Institute for Clinical and Health Research, University of Michigan, Ann Arbor, MI, USA.

Laura James (L)

Department of Pediatrics, College of Medicine, Translational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USA.

Classifications MeSH