From prospective clinical trial to reducing social inequalities in health: The DESSEIN trial, concept and design of a multidisciplinary study in precarious patients with breast cancer.

Anthropologist Breast cancer Epidemiologist Geographic information system Health economist Health geographer Precariousness Qualitative interviews Social inequalities in health Socio-economic deprivation Stage at diagnosis

Journal

BMC public health
ISSN: 1471-2458
Titre abrégé: BMC Public Health
Pays: England
ID NLM: 100968562

Informations de publication

Date de publication:
04 Nov 2019
Historique:
received: 31 07 2019
accepted: 10 09 2019
entrez: 6 11 2019
pubmed: 7 11 2019
medline: 30 1 2020
Statut: epublish

Résumé

In France during the last 15 years, precariousness among women has increased. In breast cancer, precariousness has been associated with an increase in mortality, but the links between precariousness, stage at diagnosis and care pathway are little explored. Our study aims to evaluate the impact of precariousness on care pathways, treatment and recovery phase according to a multidisciplinary analysis. Comparative prospective observational multicenter study of exposed / unexposed category. Patients with breast cancer are recruited in the Ile de France area. Three scores are used to identify precarious patients. Precarious patients are matched to non-precarious patients by age group. Questionnaires are distributed to patients at different times of care. The main objective is to compare the stage of the disease at diagnosis between two groups. The secondary objectives are: comparison of socio-economic and geographical characteristics, direct and indirect costs, personal trajectories of care and health. Analysis include multidisciplinary approaches. A geographical information systems method will evaluate the accessibility to health facilities and the characteristics of the places of residence of the patients. An anthropological analysis will be conducted through observation of consultations and semi-directed interviews with patients. These methods will allow to analyze the diagnostic and therapeutic routes, placing it in a life history and an economic, socio-cultural and health environment. The economic analysis will include a comparison of direct, indirect costs and out-off pocket costs, from the patient's point of view and from the societal perspective. Conducted in a clinical setting and coupled with a qualitative study, this study will provide a better understanding of how contextual factors, combined with individual factors, can influence the course of health and thus the stage of the disease at diagnosis. The multidisciplinary approach, involving clinicians, geographers, an anthropologist, an economist and a health epidemiologist, will allow a multidimensional approach to the impact of precariousness on breast cancer. ClinicalTrials.gov Identifier: NCT02948478 registered October 28, 2016. 2016-A00589-42. protocol version: 2.1. decembre 13, 2018.

Sections du résumé

BACKGROUND BACKGROUND
In France during the last 15 years, precariousness among women has increased. In breast cancer, precariousness has been associated with an increase in mortality, but the links between precariousness, stage at diagnosis and care pathway are little explored. Our study aims to evaluate the impact of precariousness on care pathways, treatment and recovery phase according to a multidisciplinary analysis.
METHODS AND DESIGN METHODS
Comparative prospective observational multicenter study of exposed / unexposed category. Patients with breast cancer are recruited in the Ile de France area. Three scores are used to identify precarious patients. Precarious patients are matched to non-precarious patients by age group. Questionnaires are distributed to patients at different times of care. The main objective is to compare the stage of the disease at diagnosis between two groups. The secondary objectives are: comparison of socio-economic and geographical characteristics, direct and indirect costs, personal trajectories of care and health. Analysis include multidisciplinary approaches. A geographical information systems method will evaluate the accessibility to health facilities and the characteristics of the places of residence of the patients. An anthropological analysis will be conducted through observation of consultations and semi-directed interviews with patients. These methods will allow to analyze the diagnostic and therapeutic routes, placing it in a life history and an economic, socio-cultural and health environment. The economic analysis will include a comparison of direct, indirect costs and out-off pocket costs, from the patient's point of view and from the societal perspective.
DISCUSSION CONCLUSIONS
Conducted in a clinical setting and coupled with a qualitative study, this study will provide a better understanding of how contextual factors, combined with individual factors, can influence the course of health and thus the stage of the disease at diagnosis. The multidisciplinary approach, involving clinicians, geographers, an anthropologist, an economist and a health epidemiologist, will allow a multidimensional approach to the impact of precariousness on breast cancer.
TRIAL REGISTRATION BACKGROUND
ClinicalTrials.gov Identifier: NCT02948478 registered October 28, 2016.
ID RCB UNASSIGNED
2016-A00589-42. protocol version: 2.1. decembre 13, 2018.

Identifiants

pubmed: 31684919
doi: 10.1186/s12889-019-7611-6
pii: 10.1186/s12889-019-7611-6
pmc: PMC6829797
doi:

Banques de données

ClinicalTrials.gov
['NCT02948478']

Types de publication

Clinical Trial Comparative Study Journal Article Multicenter Study Observational Study

Langues

eng

Sous-ensembles de citation

IM

Pagination

1450

Subventions

Organisme : INCA
ID : 2015-1-PL SHS-01

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Auteurs

Charlotte Ngô (C)

Centre Expert Oncologie Gynécologique et Sénologie, Hôpital Européen Georges Pompidou, AP-HP, Paris, France. charlotte.ngo@aphp.fr.
Faculté de Médecine, Université Paris-Descartes, Sorbonne Paris Cité, Paris, France. charlotte.ngo@aphp.fr.

Aurélia Dinut (A)

Clinical Research Unit and CIC 1418 INSERM Hôpital Européen Georges Pompidou, AP-HP, Paris, France.

Audrey Bochaton (A)

Health Geography, Université Paris Nanterre (UPN), UMR7533 Ladyss, Nanterre, France.

Hélène Charreire (H)

Université Paris-Est, Lab'Urba, UPEC, Créteil, France.

Caroline Desprès (C)

Faculté de Médecine, Université Paris-Descartes, Sorbonne Paris Cité, Paris, France.

Sandrine Baffert (S)

Health Economist, Department of Health Economy, Cemka, Paris, France.

Fabrice Lécuru (F)

Centre Expert Oncologie Gynécologique et Sénologie, Hôpital Européen Georges Pompidou, AP-HP, Paris, France.

Gilles Chatellier (G)

Faculté de Médecine, Université Paris-Descartes, Sorbonne Paris Cité, Paris, France.
Epidemiologist, Clinical Research Unit, and CIC 1418 INSERM Hôpital Européen Georges Pompidou, AP-HP, Paris, France.

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Classifications MeSH