Parents' information needs and preferences related to bronchiolitis: a qualitative study.
Journal
CMAJ open
ISSN: 2291-0026
Titre abrégé: CMAJ Open
Pays: Canada
ID NLM: 101620603
Informations de publication
Date de publication:
Historique:
entrez:
7
11
2019
pubmed:
7
11
2019
medline:
7
11
2019
Statut:
epublish
Résumé
Bronchiolitis affects more than one-third of children less than age 2 years and can cause substantial anxiety for parents, leading them to seek information on how to care for their sick child. The aim of our qualitative study was to explore the information needs and preferences of parents caring for a child with bronchiolitis. We used a qualitative descriptive approach. Participants were recruited by means of purposive sampling from Oct. 1, 2017, to Mar. 15, 2018 from the Stollery Children's Hospital emergency department, a specialized pediatric emergency department in Edmonton. Individual semistructured interviews were conducted. Fifty-three parents were recruited to participate, of whom 30 could not be reached after 4 contact attempts and 8 refused. Thus, 15 parents participated (16 children). Three major themes were identified: 1) parents' information needs about bronchiolitis, 2) parents' preferred information sources and 3) parents' preferred information delivery formats. Participants indicated that they want and require credible, easy-to-understand information about bronchiolitis in a variety of formats, and especially valued information obtained directly from a health care professional or an evidence-based website. This study provides important information about parents' information needs concerning bronchiolitis in children. Identifying the information that parents want and value in relation to acute pediatric illnesses is imperative to developing innovative educational approaches for parents that reflect patient-centred care.
Sections du résumé
BACKGROUND
BACKGROUND
Bronchiolitis affects more than one-third of children less than age 2 years and can cause substantial anxiety for parents, leading them to seek information on how to care for their sick child. The aim of our qualitative study was to explore the information needs and preferences of parents caring for a child with bronchiolitis.
METHODS
METHODS
We used a qualitative descriptive approach. Participants were recruited by means of purposive sampling from Oct. 1, 2017, to Mar. 15, 2018 from the Stollery Children's Hospital emergency department, a specialized pediatric emergency department in Edmonton. Individual semistructured interviews were conducted.
RESULTS
RESULTS
Fifty-three parents were recruited to participate, of whom 30 could not be reached after 4 contact attempts and 8 refused. Thus, 15 parents participated (16 children). Three major themes were identified: 1) parents' information needs about bronchiolitis, 2) parents' preferred information sources and 3) parents' preferred information delivery formats. Participants indicated that they want and require credible, easy-to-understand information about bronchiolitis in a variety of formats, and especially valued information obtained directly from a health care professional or an evidence-based website.
INTERPRETATION
CONCLUSIONS
This study provides important information about parents' information needs concerning bronchiolitis in children. Identifying the information that parents want and value in relation to acute pediatric illnesses is imperative to developing innovative educational approaches for parents that reflect patient-centred care.
Identifiants
pubmed: 31690651
pii: 7/4/E640
doi: 10.9778/cmajo.20190092
pmc: PMC6944130
doi:
Types de publication
Journal Article
Langues
eng
Pagination
E640-E645Informations de copyright
Copyright 2019, Joule Inc. or its licensors.
Déclaration de conflit d'intérêts
Competing interests: None declared.
Références
Health Expect. 2008 Sep;11(3):232-51
pubmed: 18816320
Patient Educ Couns. 2014 May;95(2):248-53
pubmed: 24569180
BMJ Open. 2015 Dec 16;5(12):e008280
pubmed: 26674495
Res Nurs Health. 1995 Apr;18(2):179-83
pubmed: 7899572
CJEM. 2017 May;19(3):198-206
pubmed: 27608979
J Clin Nurs. 2013 Oct;22(19-20):2723-33
pubmed: 23763441
Pediatrics. 2005 Jun;115(6):1536-46
pubmed: 15930214
J Patient Exp. 2019 Mar;6(1):53-61
pubmed: 31236452
Paediatr Child Health. 2014 Nov;19(9):485-98
pubmed: 25414585
BMC Fam Pract. 2013 Jul 28;14:106
pubmed: 23890343
BMJ Open. 2014 Jan 14;4(1):e003874
pubmed: 24430877
J Matern Fetal Neonatal Med. 2006 Apr;19(4):221-4
pubmed: 16854695
J Adv Nurs. 2000 Apr;31(4):821-32
pubmed: 10759978
J Child Health Care. 2015 Jun;19(2):216-28
pubmed: 24154843
J Pediatr Nurs. 2013 Nov-Dec;28(6):e19-21
pubmed: 23531460
Patient Educ Couns. 2019 May;102(5):864-878
pubmed: 30573297
Res Nurs Health. 2000 Aug;23(4):334-40
pubmed: 10940958
J Paediatr Child Health. 2008 Jul-Aug;44(7-8):419-23
pubmed: 18564080
Early Hum Dev. 2013 Oct;89 Suppl 3:S7-11
pubmed: 23972293