Parents of Very Young Children with Congenital Heart Defects Report Good Quality of Life for Their Children and Families Regardless of Defect Severity.
Congenital heart defects
Pediatrics
Quality of life
Journal
Pediatric cardiology
ISSN: 1432-1971
Titre abrégé: Pediatr Cardiol
Pays: United States
ID NLM: 8003849
Informations de publication
Date de publication:
Jan 2020
Jan 2020
Historique:
received:
08
05
2019
accepted:
15
10
2019
pubmed:
9
11
2019
medline:
19
5
2020
entrez:
9
11
2019
Statut:
ppublish
Résumé
The purpose of this study was to investigate parent reports of quality of life for their very young children with congenital heart defects (CHD) and to compare their scores to previously published data. Parents of children 1-3 years old with CHD or innocent heart murmurs completed the Pediatric Quality of Life Inventory (PedsQL) core, cardiac, and family impact modules. Multivariable regression analyses assessed the impact of age, sex, family income, and CHD treatment history (study group) on PedsQL scores. Correlations between family impact and core/cardiac modules were examined. PedsQL scores were compared to healthy norms. 140 parents of young children participated within four study groups: CHD no treatment (n = 44), CHD treatment without bypass (n = 26), CHD treatment with bypass (n = 42) ,and innocent heart murmurs (n = 28). Male sex was associated with higher core (F = 4.16, p = 0.04, σ
Identifiants
pubmed: 31701166
doi: 10.1007/s00246-019-02220-1
pii: 10.1007/s00246-019-02220-1
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
46-53Références
Pediatr Cardiol. 2007 Jul-Aug;28(4):255-62
pubmed: 17486393
Qual Life Res. 2005 Oct;14(8):1915-24
pubmed: 16155778
J Pediatr Nurs. 2002 Jun;17(3):174-83
pubmed: 12094359
Arch Dis Child. 2014 May;99(5):413-9
pubmed: 24406805
Health Qual Life Outcomes. 2007 Jan 03;5:2
pubmed: 17201923
Health Qual Life Outcomes. 2008 Nov 03;6:91
pubmed: 18980676
Cardiol Young. 2000 May;10(3):239-44
pubmed: 10824905
J Psychosom Res. 2002 Apr;52(4):193-208
pubmed: 11943238
Cardiol Young. 2017 Mar;27(2):243-254
pubmed: 27055357
J Pediatr. 2014 Apr;164(4):781-788.e1
pubmed: 24412135
Arch Dis Child. 2014 Jul;99(7):641-5
pubmed: 24636955
Qual Life Res. 2013 Oct;22(8):2063-72
pubmed: 23196922
Cardiol Young. 2006 Feb;16(1):67-75
pubmed: 16454880
Med Care. 2001 Aug;39(8):800-12
pubmed: 11468499
BMC Pediatr. 2015 Nov 21;15:193
pubmed: 26590070
J Cardiovasc Nurs. 2018 Jul/Aug;33(4):363-371
pubmed: 29601369
Cardiol Young. 2005 Apr;15(2):133-40
pubmed: 15845155
J Dev Behav Pediatr. 2002 Oct;23(5):314-21
pubmed: 12394519
Cardiol Young. 2015 Aug;25(6):1027-36
pubmed: 25683247
Heart Lung. 2006 Sep-Oct;35(5):301-14
pubmed: 16963362
Heart Lung. 2015 Nov-Dec;44(6):494-511
pubmed: 26404115
Arch Dis Child. 2019 Apr;104(4):340-347
pubmed: 29572215
Psychol Rep. 1966 Aug;19(1):3-11
pubmed: 5942109
Cardiol Young. 2002 Dec;12(6):524-30
pubmed: 12645496
J Pediatr Health Care. 2003 Jul-Aug;17(4):163-8
pubmed: 12847425
Arch Dis Child. 2018 Feb;103(2):170-175
pubmed: 28855227
J Spec Pediatr Nurs. 2018 Jan;23(1):
pubmed: 29266743
J Pediatr. 2018 Nov;202:63-69
pubmed: 30243535
Early Hum Dev. 2016 Dec;103:101-107
pubmed: 27565126
Pediatrics. 2008 May;121(5):e1060-7
pubmed: 18450848