Global Outcome Assessment Life-long after stroke in young adults initiative-the GOAL initiative: study protocol and rationale of a multicentre retrospective individual patient data meta-analysis.


Journal

BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874

Informations de publication

Date de publication:
14 11 2019
Historique:
entrez: 16 11 2019
pubmed: 16 11 2019
medline: 28 10 2020
Statut: epublish

Résumé

Worldwide, 2 million patients aged 18-50 years suffer a stroke each year, and this number is increasing. Knowledge about global distribution of risk factors and aetiologies, and information about prognosis and optimal secondary prevention in young stroke patients are limited. This limits evidence-based treatment and hampers the provision of appropriate information regarding the causes of stroke, risk factors and prognosis of young stroke patients. The Global Outcome Assessment Life-long after stroke in young adults (GOAL) initiative aims to perform a global individual patient data meta-analysis with existing data from young stroke cohorts worldwide. All patients aged 18-50 years with ischaemic stroke or intracerebral haemorrhage will be included. Outcomes will be the distribution of stroke aetiology and (vascular) risk factors, functional outcome after stroke, risk of recurrent vascular events and death and finally the use of secondary prevention. Subgroup analyses will be made based on age, gender, aetiology, ethnicity and climate of residence. Ethical approval for the GOAL study has already been obtained from the Medical Review Ethics Committee region Arnhem-Nijmegen. Additionally and when necessary, approval will also be obtained from national or local institutional review boards in the participating centres. When needed, a standardised data transfer agreement will be provided for participating centres. We plan dissemination of our results in peer-reviewed international scientific journals and through conference presentations. We expect that the results of this unique study will lead to better understanding of worldwide differences in risk factors, causes and outcome of young stroke patients.

Identifiants

pubmed: 31727655
pii: bmjopen-2019-031144
doi: 10.1136/bmjopen-2019-031144
pmc: PMC6887075
doi:

Types de publication

Journal Article Meta-Analysis Multicenter Study

Langues

eng

Sous-ensembles de citation

IM

Pagination

e031144

Commentaires et corrections

Type : ErratumIn

Informations de copyright

© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Merel S Ekker (MS)

Neurology, Radboudumc, Nijmegen, The Netherlands merel.ekker@radboudumc.nl.

Mina A Jacob (MA)

Department of Neurology, Radboudumc, Nijmegen, The Netherlands.

Myrna M E van Dongen (MME)

Radboudumc, Nijmegen, The Netherlands.

Karoliina Aarnio (K)

Helsinki University Hospital, Helsinki, Finland.

Arunkar K Annamalai (AK)

North Tees and Hartlepool NHS Foundation Trust, Stockton on Tees, UK.

Antonio Arauz (A)

Stroke Clinic, National Institute of Neurology and Neurosurgery Manuel Velasco Suarez, Mexico City, Mexico.

Marcel Arnold (M)

Neurology Department, Stroke Center, the Stroke Unit and the Neurovascular Laboratory of the Inselspital Hospital, Bern, Switzerland.

Miguel A Barboza (MA)

Neurology Department, Hospital Rafael Angel Calderon Guardia, San Jose, Costa Rica.

Manuel Bolognese (M)

Neurology Department, Luzerner Kantonsspital, Luzern, Switzerland.

Raf Brouns (R)

Neurology Department, ZorgSaam, Terneuzen, The Netherlands.
Neurology Department, Vrije Universiteit Brussel, Brussel, Belgium.

Batnairamdal Chuluun (B)

International School of Traditional Medicine, Mongolian National University of Medical Sciences, Ulaanbaatar, Mongolia.

Enkhzaya Chuluunbaatar (E)

Department of Neurology, Taipei Medical University, Taipei, Taiwan.

Byambasuren Dagvajantsan (B)

Department of Neurology, Mongolian National University of Medical Sciences, Ulaanbaatar, Mongolia.

Stephanie Debette (S)

Bordeaux Population Health Research Centre, University of Bordeaux College of Health Sciences, Bordeaux, France.

Adi Don (A)

School of Medicine, Sackler Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel.

Chris Enzinger (C)

Department of Neurology, Division of Neuroradiology, Department of Radiology, Medical University of Graz, Graz, Austria.

Esme Ekizoglu (E)

Department of Neurology, Istanbul University Istanbul Faculty of Medicine, Istanbul, Turkey.

Simon Fandler-Höfler (S)

Department of Neurology, Medical University of Graz, Graz, Austria.

Franz Fazekas (F)

Department of Neurology, Medical University of Graz, Graz, Austria.

Anette Fromm (A)

Centre for Neurovascular Diseases, Department of Neurology, Haukeland University Hospital, Bergen, Norway.

Thomas Gattringer (T)

Department of Neurology, Medical University of Graz, Graz, Austria.

Giosue Gulli (G)

Department of Stroke Medicine, Ashford and St Peter's Hospitals, Chertsey, UK.

Michael Hoffmann (M)

Stroke Center, Department of Neurology, University of South Florida, Tampa, Florida, USA.

Thiago F Hora (TF)

SARAH Hospital of Rehabilitation, Brasilia, UK.

Christina Jern (C)

Department of Medical and Clinical Genetics, Institute of Biomedicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.

Katarina Jood (K)

Department for Clinical Neuroscience and Rehabilitation, Department for Clinical Neuroscience and Rehabilitation, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.

Masahiro Kamouchi (M)

Department of Health Care Administration and Management, Kyushu University, Fukuoka, Japan.

Young Seo Kim (YS)

Department of Neurology, Hanyang University College of Medicine, Seongdong-Gu, Korea (The Republic of).

Takanari Kitazono (T)

Department of Medicine and Clinical Science, Kyushu University Faculty of Medicine Graduate School of Medical Sciences School of Medicine, Fukuoka, Japan.

Steven J Kittner (SJ)

Neurology Department, University of Maryland School of Medicine, Baltimore, Maryland, USA.

Timothy J Kleinig (TJ)

Department of Neurology, Royal Adelaide Hospital, Adelaide, South Australia, Australia.

Catharina J M Klijn (CJM)

Department of Neurology, Radboudumc, Nijmegen, The Netherlands.

Janika Korv (J)

Neurology and Neurosurgery, University of Tartu, Tartu, Estonia.

Tsong-Hai Lee (TH)

Neurology, Linkou Chang Gung Memorial Hospital, Taoyuan, Kweishan, Taiwan.

Didier Leys (D)

Neurology Department, University of Lille, Lille, Hauts-de-France, France.

Noortje A M Maaijwee (NAM)

Department of Neurology and Neurorehabilitation, Cantonal Hospital Lucerne, Luzern, LU, Switzerland.

Nicolas Martinez-Majander (N)

Department of Neurology, Helsinki University Hospital, Helsinki, Finland.

João Pedro Marto (JP)

Department of Neurology, Hospital de Egas Moniz, Lisboa, Portugal.

Man M Mehndiratta (MM)

Department of Neurology, Govind Ballabh Pant Hospital, New Delhi, India.

Victoria Mifsud (V)

Neurological Institute, Cleveland Clinic Abu Dhabi, Abu Dhabi, United Arab Emirates.

Vinicius V Montanaro (VV)

SARAH Hospital of Rehabilitation, Brasilia, Brazil.

Mayowa O Owolabi (MO)

Medicine, University of Ibadan College of Medicine, Ibadan, Nigeria.

Vinod B Patel (VB)

Department of Neurology, Inkosi Albert Luthuli Central Hospital, Mayville, South Africa.

Matthew C Phillips (MC)

Department of Neurology, Waikato Hospital, Hamilton, New Zealand.

Bartlomiej Piechowski-Jozwiak (B)

Neurological Institute, Cleveland Clinic Abu Dhabi, Abu Dhabi, United Arab Emirates.

Aleksandra Pikula (A)

Neurology, University of Toronto Faculty of Medicine, Toronto, Ontario, Canada.

Jose Luis Ruiz-Sandoval (JL)

Department of Neurology, Hospital Civil de Guadalajara Unidad Hospitalaria Fray Antonio Alcalde, Guadalajara, Mexico.

Bettina Sarnowski (B)

Neurology, Ernst-Moritz-Arndt Universitat Greifswald, Greifswald, Germany.

Floris H B M Schreuder (FHBM)

Department of Neurology, Radboudumc, Nijmegen, The Netherlands.

Rick H Swartz (RH)

Department of Neurology, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada.

K S Tan (KS)

Department of Medicine, University of Malaya, Kuala Lumpur, Malaysia.

David Tanne (D)

Department of Epidemiology and Preventive Medicine, Tel Aviv University Sackler Faculty of Medicine, Tel Aviv, Israel.

T Tatlisumak (T)

Department of Neurology, Helsinki University Hospital, Helsinki, Finland.

Vincent Thijs (V)

Department of Neurology, Royal Adelaide Hospital, Adelaide, South Australia, Australia.

Anil M Tuladhar (AM)

Department of Neurology, Radboudumc, Nijmegen, The Netherlands.

Miguel Viana-Baptista (M)

Department of Neurology, Hospital de Egas Moniz, Lisboa, Portugal.

Riina Vibo (R)

Department of Neurology and Neurosurgery, University of Tartu, Tartu, Estonia.

Teddy Y Wu (TY)

Department of Neurology, Christchurch Hospital, Christchurch, UK.

Nilüfer Yesilot (N)

Department of Neurology, Istanbul University Istanbul Faculty of Medicine, Istanbul, Turkey.

Ulrike Waje-Andreassen (U)

Department of Neurology, Haukeland University Hospital, Bergen, Norway.

Alessandro Pezzini (A)

Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Lombardia, Italy.

Jukka Putaala (J)

Department of Neurological Sciences, University of Helsinki, Helsinki, Finland.
Department of Neurology, Helsinki University Central Hospital, Helsinki, Finland.

Frank-Erik de Leeuw (FE)

Department of Neurology, Radboudumc, Nijmegen, The Netherlands.

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