Non-attendance at urgent referral appointments for suspected cancer: a qualitative study to gain understanding from patients and GPs.

cancer communication diagnosis no-show patients primary health care socioeconomic factors

Journal

The British journal of general practice : the journal of the Royal College of General Practitioners
ISSN: 1478-5242
Titre abrégé: Br J Gen Pract
Pays: England
ID NLM: 9005323

Informations de publication

Date de publication:
18 Nov 2019
Historique:
received: 15 04 2019
accepted: 20 08 2019
entrez: 20 11 2019
pubmed: 20 11 2019
medline: 20 11 2019
Statut: aheadofprint

Résumé

The 2-week-wait urgent referral policy in the UK has sought to improve cancer outcomes by accelerating diagnosis and treatment. However, around 5-7% of symptomatic referred patients cancel or do not attend their hospital appointment. While subsequent cancer diagnosis was less likely in non-attenders, those with a diagnosis had worse early mortality outcomes. To examine how interpersonal, communication, social, and organisational factors influence a patient's non-attendance. Qualitative study in GP practices in one Northern English city. In-depth, individual interviews were undertaken face-to-face or by telephone between December 2016 and May 2018, followed by thematic framework analysis. In this study 21 GPs, and 24 patients who did not attend or had cancelled their appointment were interviewed, deriving a range of potential explanations for non-attendance, including: system flaws; GP difficulties with booking appointments; patient difficulties with navigating the appointment system, particularly older patients and those from more deprived areas; patients leading 'difficult lives'; and patients' expectations of the referral, informed by their beliefs, circumstances, priorities, and the perceived prognosis. GPs recognised the importance of communication with the patient, particularly the need to tailor communication to perceived patient understanding and anxiety. GPs and practices varied in their responses to patient non-attendance, influenced by time pressures and perceptions of patient responsibility. Failure to be seen within 2 weeks of urgent referral resulted from a number of patient and provider factors. The urgent referral process in general practice and cancer services should accommodate patient perceptions and responses, facilitate referral and attendance, and enable responses to patient non-attendance.

Sections du résumé

BACKGROUND BACKGROUND
The 2-week-wait urgent referral policy in the UK has sought to improve cancer outcomes by accelerating diagnosis and treatment. However, around 5-7% of symptomatic referred patients cancel or do not attend their hospital appointment. While subsequent cancer diagnosis was less likely in non-attenders, those with a diagnosis had worse early mortality outcomes.
AIM OBJECTIVE
To examine how interpersonal, communication, social, and organisational factors influence a patient's non-attendance.
DESIGN AND SETTING METHODS
Qualitative study in GP practices in one Northern English city.
METHOD METHODS
In-depth, individual interviews were undertaken face-to-face or by telephone between December 2016 and May 2018, followed by thematic framework analysis.
RESULTS RESULTS
In this study 21 GPs, and 24 patients who did not attend or had cancelled their appointment were interviewed, deriving a range of potential explanations for non-attendance, including: system flaws; GP difficulties with booking appointments; patient difficulties with navigating the appointment system, particularly older patients and those from more deprived areas; patients leading 'difficult lives'; and patients' expectations of the referral, informed by their beliefs, circumstances, priorities, and the perceived prognosis. GPs recognised the importance of communication with the patient, particularly the need to tailor communication to perceived patient understanding and anxiety. GPs and practices varied in their responses to patient non-attendance, influenced by time pressures and perceptions of patient responsibility.
CONCLUSION CONCLUSIONS
Failure to be seen within 2 weeks of urgent referral resulted from a number of patient and provider factors. The urgent referral process in general practice and cancer services should accommodate patient perceptions and responses, facilitate referral and attendance, and enable responses to patient non-attendance.

Identifiants

pubmed: 31740457
pii: bjgp1919X706625
doi: 10.3399/bjgp1919X706625
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© British Journal of General Practice 2019.

Auteurs

Laura Jefferson (L)

University of York, York.

Karl Atkin (K)

University of York, York.

Rebecca Sheridan (R)

University of York, York.

Steven Oliver (S)

University of York, Hull York Medical School, Hull and York.

Una Macleod (U)

University of Hull, Hull York Medical School, Hull and York.

Geoff Hall (G)

University of Leeds and Leeds Teaching Hospitals NHS Trust, Leeds.

Sarah Forbes (S)

Oakwood Lane Medical Practice, Leeds.

Trish Green (T)

University of Hull, Hull York Medical School, Hull and York.

Victoria Allgar (V)

University of York, Hull York Medical School, Hull and York.

Peter Knapp (P)

University of York, Hull York Medical School, Hull and York.

Classifications MeSH