Should a Caregiver's QoL Be Considered in Decisions About Whether a Patient Has an Experimental Double-Hand Transplant?


Journal

AMA journal of ethics
ISSN: 2376-6980
Titre abrégé: AMA J Ethics
Pays: United States
ID NLM: 101649265

Informations de publication

Date de publication:
01 11 2019
Historique:
entrez: 20 11 2019
pubmed: 20 11 2019
medline: 28 7 2020
Statut: epublish

Résumé

A goal of hand and upper extremity transplantation is to return motor and sensory function to an amputee. Given the integral roles of one's hands in activities of daily living and social interaction, however, restoring psychosocial well-being should also be a priority. Based on the authors' experience, double-hand transplantation success depends significantly on strong social support, physical rehabilitation, medication adherence, and social integration. Because caregiving is demanding, tasks should be distributed among members of a patient's family and social network. This article analyzes how to respond to an overwhelmed caregiver by drawing on solid organ transplant literature about caregiver fatigue.

Identifiants

pubmed: 31742542
pii: amajethics.2019.943
doi: 10.1001/amajethics.2019.943
pii:
doi:

Types de publication

Case Reports Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

E943-952

Informations de copyright

© 2019 American Medical Association. All Rights Reserved.

Auteurs

Miguel I Dorante (MI)

A bioethicist and plastic and reconstructive surgery resident at Lahey Hospital and Medical Center in Burlington, Massachusetts, and a research fellow with the Center for Reconstructive and Restorative Surgery Research at Brigham and Women's Hospital.

Elaine Devine (E)

A clinical social worker for the Brigham and Women's Hospital face and extremity transplant program in Boston, Massachusetts.

Simon G Talbot (SG)

A plastic and reconstructive surgeon at Brigham and Women's Hospital in Boston, Massachusetts, where he is the director of the Upper Extremity Transplant Program, and an associate professor of surgery at Harvard Medical School.

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Classifications MeSH