Population-based prevalence and incidence estimates of primary discoid lupus erythematosus from the Manhattan Lupus Surveillance Program.

Discoid Lupus Erythematosus Registry epidemiology

Journal

Lupus science & medicine
ISSN: 2053-8790
Titre abrégé: Lupus Sci Med
Pays: England
ID NLM: 101633705

Informations de publication

Date de publication:
2019
Historique:
received: 31 05 2019
revised: 22 08 2019
accepted: 03 10 2019
entrez: 5 12 2019
pubmed: 5 12 2019
medline: 5 12 2019
Statut: epublish

Résumé

Epidemiological data for primary discoid lupus erythematosus (pDLE) remain limited, particularly for racial/ethnic populations in the USA. The Manhattan Lupus Surveillance Program (MLSP) is a population-based retrospective registry of cases with SLE and related diseases including pDLE in Manhattan and was used to provide estimates of the prevalence and incidence of pDLE across major racial/ethnic populations. MLSP cases were identified from rheumatologists, hospitals and population databases. Two case definitions were used for pDLE: the primary case definition which was any physician diagnosis found in the chart and a secondary case definition which was limited to cases diagnosed by a rheumatologist and/or dermatologist. Rates among Manhattan residents were age-adjusted, and capture-recapture analyses were conducted to assess case under-ascertainment. Based on the primary definition, age-adjusted overall prevalence and incidence rates of pDLE among Manhattan residents were 6.5 and 0.8 per 100 000 person-years, which increased to 9.0 and 1.3 after capture-recapture adjustment. Prevalence and incidence rates were approximately two and six times higher, respectively, among women compared with men (p<0.0001). Higher prevalence was also found among non-Latino blacks (23.5) and Latinos (8.2) compared with non-Latino whites (1.8) and non-Latino Asians (0.6) (p<0.0001). Incidence was highest among non-Latino blacks (2.4) compared with all other racial/ethnic groups. Similar relationships were observed for the secondary case definition. Data from the MLSP provide epidemiological estimates for pDLE among the major racial/ethnic populations in the USA and reveal disparities in pDLE prevalence and incidence by sex and race/ethnicity among Manhattan residents.

Identifiants

pubmed: 31798917
doi: 10.1136/lupus-2019-000344
pii: lupus-2019-000344
pmc: PMC6827754
doi:

Types de publication

Journal Article

Langues

eng

Pagination

e000344

Commentaires et corrections

Type : ErratumIn

Informations de copyright

© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Peter Izmirly (P)

Division of Rheumatology, Department of Medicine, New York University School of Medicine, New York City, New York, USA.

Jill Buyon (J)

Division of Rheumatology, Department of Medicine, New York University School of Medicine, New York City, New York, USA.

H Michael Belmont (HM)

Division of Rheumatology, Department of Medicine, New York University School of Medicine, New York City, New York, USA.

Sara Sahl (S)

Department of Pediatrics, Harbor-University of California Medical Center, Los Angeles, California, USA.

Isabella Wan (I)

Division of Rheumatology, Department of Medicine, New York University School of Medicine, New York City, New York, USA.

Jane Salmon (J)

Division of Rheumatology, Department of Medicine, Hospital for Special Surgery, Weill Cornell Medical College, New York City, New York, USA.

Anca Askanase (A)

Division of Rheumatology, Department of Medicine, Columbia University College of Physicians & Surgeons, New York City, New York, USA.

Joan M Bathon (JM)

Division of Rheumatology, Department of Medicine, Columbia University College of Physicians & Surgeons, New York City, New York, USA.

Laura Geraldino-Pardilla (L)

Division of Rheumatology, Department of Medicine, Columbia University College of Physicians & Surgeons, New York City, New York, USA.

Yousaf Ali (Y)

Division of Rheumatology, Department of Medicine, Icahn School of Medicine at Mount Sinai, New York City, New York, USA.

Ellen Ginzler (E)

Division of Rheumatology, Department of Medicine, State University of New York Downstate College of Medicine, Brooklyn, New York, USA.

Chaim Putterman (C)

Division of Rheumatology, Department of Medicine, Albert Einstein College of Medicine, Bronx, New York, USA.

Caroline Gordon (C)

Rheumatology Research Group, Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.

Charles Helmick (C)

Arthritis Program, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.

Hilary Parton (H)

New York City Department of Health and Mental Hygiene, Long Island City, New York, USA.

Classifications MeSH