Patient empowerment for cancer patients through a novel ICT infrastructure.
Cancer
Patient empowerment
Personal health system
Psychoemotional monitoring
Journal
Journal of biomedical informatics
ISSN: 1532-0480
Titre abrégé: J Biomed Inform
Pays: United States
ID NLM: 100970413
Informations de publication
Date de publication:
01 2020
01 2020
Historique:
received:
09
11
2018
revised:
15
11
2019
accepted:
21
11
2019
pubmed:
10
12
2019
medline:
29
7
2021
entrez:
10
12
2019
Statut:
ppublish
Résumé
As a result of recent advances in cancer research and "precision medicine" approaches, i.e. the idea of treating each patient with the right drug at the right time, more and more cancer patients are being cured, or might have to cope with a life with cancer. For many people, cancer survival today means living with a complex and chronic condition. Surviving and living with or beyond cancer requires the long-term management of the disease, leading to a significant need for active rehabilitation of the patients. In this paper, we present a novel methodology employed in the iManageCancer project for cancer patient empowerment in which personal health systems, serious games, psychoemotional monitoring and other novel decision-support tools are combined into an integrated patient empowerment platform. We present in detail the ICT infrastructure developed and our evaluation with the involvement of cancer patients on two sites, a large-scale pilot for adults and a small-scale test for children. The evaluation showed mixed evidences on the improvement of patient empowerment, while ability to cope with cancer, including improvement in mood and resilience to cancer, increased for the participants of the adults' pilot.
Identifiants
pubmed: 31816400
pii: S1532-0464(19)30261-8
doi: 10.1016/j.jbi.2019.103342
pii:
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
103342Informations de copyright
Copyright © 2019 Elsevier Inc. All rights reserved.